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  1. Suffolkres
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Request from today. "Do you know how I can find the oxford Brooks research that NICE asked for with regards to children?" Is it shown in the cited...
    Post by: Suffolkres, Nov 18, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  2. Suffolkres
    Post

    Scottish Parliament hearings and report on #MEAction Scotland petition - 2019/20

    Scottish Parliament Wednesday 26 August 2020 Public Petitions Committee Myalgic Encephalomyelitis (Treatment) (PE1690)...
    Post by: Suffolkres, Nov 17, 2020 in forum: Advocacy Projects and Campaigns
  3. Suffolkres
    Post

    United Kingdom: MRC and NIHR funding for Covid-19 and long Covid

    https://www.strathallantimes.co.uk/news/national-news/18795240.long-covid-four-different-syndromes---academics/ 'Academics said that more work is...
    Post by: Suffolkres, Nov 16, 2020 in forum: Long Covid news
  4. Suffolkres
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Speaking of costs.-in the last NICE Guideline 2007, there was a costing table for patients (linked to the likely patient tariff system) of a...
    Post by: Suffolkres, Nov 10, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  5. Suffolkres
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    A little backtracking and history here-and a pointer that we need to interrogate and understand the processes which result in 'People and Teams' &...
    Post by: Suffolkres, Nov 10, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  6. Suffolkres
    Post

    Simon Wessely on Covid-19

    Don't bother- lightweight...
    Post by: Suffolkres, Apr 21, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  7. Suffolkres
    Post

    Simon Wessely on Covid-19

    Tomorrow https://www.rsm.ac.uk/resources/rsm-live/ https://www.rsm.ac.uk/events/rsm-studios/2019-20/pen65/ We invite you to join us as we...
    Post by: Suffolkres, Apr 20, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  8. Suffolkres
    Post

    CAN LINGUISTIC ANALYSIS BE USED TO IDENTIFY WHETHER ADOLESCENTS WITH A CHRONIC ILLNESS ARE DEPRESSED? - Jones, Loades, Crawley et al Dec 15 2019

    Adolescence for many is a trial! Being down depressed challenged etc is all part of a 'normal typical adolescent journey'..... at least that was...
    Post by: Suffolkres, Dec 16, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Suffolkres
    Post

    (ME/CFS): Investigating care practices pointed out to disparities in diagnosis and treatment across European Union - Strand, Nacul (EUROMENE) 2019

    Thanks for the clarification! I am on acronym overload it appears......
    Post by: Suffolkres, Dec 8, 2019 in forum: ME/CFS research
  10. Suffolkres
    Post

    (ME/CFS): Investigating care practices pointed out to disparities in diagnosis and treatment across European Union - Strand, Nacul (EUROMENE) 2019

    Derek P is sound as a bell as are the Biobank team representatives. Looks to me a case of good intentions being allowed to stray off piste.........
    Post by: Suffolkres, Dec 8, 2019 in forum: ME/CFS research
  11. Suffolkres
    Thread

    Trial By Error: Professor Jonathan Edwards’ View of ME (includes discussion of exercise and long-term harm)

    http://www.virology.ws/2019/12/02/trial-by-error-professor-jonathan-edwards-view-of-me/
    Thread by: Suffolkres, Dec 2, 2019, 186 replies, in forum: General ME/CFS news
  12. Suffolkres
    Thread

    Top research priorities in healthcare-associated infection in the UK, 2019, Wilson et al.

    Sent to me by very supportive patient advocate for ME and CFS in Norfolk for nearly 40 years Dr Patrick Thompson ! "There is a mismatch between...
    Thread by: Suffolkres, Nov 29, 2019, 3 replies, in forum: Other health news and research
  13. Suffolkres
    Post

    Treatment and management of chronic fatigue syndrome/myalgic encephalomyelitis: all roads lead to Rome, 2017, Castro-Marrero et al.

    It's clear I should have read this in more detail!.........
    Post by: Suffolkres, Nov 25, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  14. Suffolkres
    Thread

    Treatment and management of chronic fatigue syndrome/myalgic encephalomyelitis: all roads lead to Rome, 2017, Castro-Marrero et al.

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5301046/ Reads rather well
    Thread by: Suffolkres, Nov 24, 2019, 4 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  15. Suffolkres
    Post

    Closed England & Wales: Survey: Involving adults with severe ME/CFS symptoms in developing a NICE guideline on ME/CFS

    This is an important questionnaire with data requested by the NICE Guideline development Group and chair Dr. Peter Barry. This request is to...
    Post by: Suffolkres, Nov 16, 2019 in forum: Recruitment into current ME/CFS research studies
  16. Suffolkres
    Post

    Closed England & Wales: Survey: Involving adults with severe ME/CFS symptoms in developing a NICE guideline on ME/CFS

    Have capture the questionnaire off the web for pre filling in on line.
    Post by: Suffolkres, Nov 15, 2019 in forum: Recruitment into current ME/CFS research studies
  17. Suffolkres
    Post

    Closed England & Wales: Survey: Involving adults with severe ME/CFS symptoms in developing a NICE guideline on ME/CFS

    I know that a paper version to prepare in advance before an upload should exist and should be made available. Most SA are both too physically and...
    Post by: Suffolkres, Nov 15, 2019 in forum: Recruitment into current ME/CFS research studies
  18. Suffolkres
    Post

    ME Association announces three new research grants, Oct 2019

    :hug::hug::hug::hug::hug::hug::hug:
    Post by: Suffolkres, Oct 23, 2019 in forum: ME/CFS research news
  19. Suffolkres
    Post

    Assessment at clinics

    How about an adapted version of the Canadian 'Symptom' scoring chart? It could be used effectively as a kind of audit trail over time. A high...
    Post by: Suffolkres, Oct 14, 2019 in forum: Advocacy Projects and Campaigns
  20. Suffolkres
    Post

    Action for M.E. 2019 AGM and conference 15th October 2019

    Medically unexplained symptoms, somatoform disorder, and compensation neurosis are outdated and/or inaccurate terms. The terms subjective,...
    Post by: Suffolkres, Oct 14, 2019 in forum: General ME/CFS news
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