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  1. Suffolkres
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Having problems with the online donation as I am uk and I cannot find where to put Suffolk in! All the options are USA . Maybe a Noscript issue...
    Post by: Suffolkres, Apr 23, 2019 in forum: Fundraising
  2. Suffolkres
    Post

    A general thread on the PACE trial!

    I know Panorama has still an interest and I have had conversations with one of the producers in the last year/
    Post by: Suffolkres, Apr 23, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. Suffolkres
    Post

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    I absolutely agree that NICE is not to be trusted, nor the RCP the Guideline developers ..... operating behind closed doors....and NICE is being...
    Post by: Suffolkres, Apr 23, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  4. Suffolkres
    Post

    A general thread on the PACE trial!

    Jerome mostly covers other issues like diet ( with Patick Holford) and adverse reactions to medication, particularly the statins fiasco. He dips...
    Post by: Suffolkres, Apr 22, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. Suffolkres
    Thread

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    http://healthinsightuk.org/2019/04/22/the-claim-that-the-cure-for-the-crippling-fatigue-of-mecfs-was-to-change-your-mind-always-seemed-bizarre-now-...
    Thread by: Suffolkres, Apr 22, 2019, 47 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  6. Suffolkres
    Post

    ME/CFS services in the United Kingdom

    https://nspccro.nihr.ac.uk/ Who are the Research Office? We are the Norfolk and Suffolk Primary and Community Care Research Office. We work with...
    Post by: Suffolkres, Apr 21, 2019 in forum: UK clinics and doctors
  7. Suffolkres
    Post

    Announcing #MillionsMissing 2019! Join us!

    Barbieloo @BarbR666 What would you do in my shoes? pic.twitter.com/z1yPHsNoQU
    Post by: Suffolkres, Apr 18, 2019 in forum: Advocacy Projects and Campaigns
  8. Suffolkres
    Post

    ME/CFS services in the United Kingdom

    A while back, NelliePLedge said, "Don’t want to be negative about your idea @Suffolkres as I know you’re battling to come up with something...
    Post by: Suffolkres, Apr 15, 2019 in forum: UK clinics and doctors
  9. Suffolkres
    Post

    Jerome Burne: "Independent investigation reveals NICE approved treatment only a fraction as effective as experts claim it is", 2016

    I can honestly say, Jerome is both really interested and truely interdependent thinking! He first wrote on the ME situation in the late 1990's...
    Post by: Suffolkres, Apr 13, 2019 in forum: General ME/CFS news
  10. Suffolkres
    Post

    Jerome Burne: "Independent investigation reveals NICE approved treatment only a fraction as effective as experts claim it is", 2016

    David T and Jerome combined would be the 'Dream Team'!
    Post by: Suffolkres, Apr 13, 2019 in forum: General ME/CFS news
  11. Suffolkres
    Post

    ME charities' response to the Reuters article

    Brilliant. Jerome got a result!
    Post by: Suffolkres, Apr 12, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  12. Suffolkres
    Post

    NICE Guideline Committee Register of Interests, 9 April 2019

    Stage 1 and Stage 2 with NICE, then the Ombudsman next if we were not happy and not accepting NICE responses.
    Post by: Suffolkres, Apr 12, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  13. Suffolkres
    Post

    NICE Guideline Committee Register of Interests, 9 April 2019

    LOcalME have drafted a stage 3 complaint to the Ombudsman - not yet sent ( my fault...)
    Post by: Suffolkres, Apr 12, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  14. Suffolkres
    Post

    Royal College of Physicians article: "Do you really believe in ME?" by Dr Nina Muirhead

    It has repeatedly said that many with ME are 'atopic', have allergies and intolerances. I think the figure was about 60%. It applies in my family,...
    Post by: Suffolkres, Apr 10, 2019 in forum: General ME/CFS news
  15. Suffolkres
    Post

    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    Also work was recently commissioned by Waveney CCG via Steven Wilkinson Dr Steven Wilkinson The Norfolk and Suffolk Primary and Community Care...
    Post by: Suffolkres, Apr 9, 2019 in forum: General ME/CFS news
  16. Suffolkres
    Post

    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    25% Group Advocate could do this...?
    Post by: Suffolkres, Apr 9, 2019 in forum: General ME/CFS news
  17. Suffolkres
    Post

    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    Ethical approval was secured for the Biobank research which served the severely affected in Norfolk and Suffolk, originally in 2011. At that time...
    Post by: Suffolkres, Apr 9, 2019 in forum: General ME/CFS news
  18. Suffolkres
    Post

    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    Biobank staff should tender for this! Eliana?
    Post by: Suffolkres, Apr 8, 2019 in forum: General ME/CFS news
  19. Suffolkres
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    I promise I will too but nearer the end so I can do him justice!
    Post by: Suffolkres, Apr 7, 2019 in forum: Fundraising
  20. Suffolkres
    Post

    Updates from the UK ME/CFS Biobank / CureME team

    I know, but his appointment is for the wider more common good. Know anyone who wants this job?!!
    Post by: Suffolkres, Apr 5, 2019 in forum: ME/CFS research news
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