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  1. Keela Too
    Post

    Electrolytes

    Just worked out BCAA stands for Branched Chain Amino Acids. :-)
    Post by: Keela Too, Oct 12, 2019 in forum: Other treatments
  2. Keela Too
    Post

    Electrolytes

    Looks like the same amounts of amino acids. Certainly interesting that it seems to have helped. I “think” my electrolyte mix helps me, but...
    Post by: Keela Too, Oct 12, 2019 in forum: Other treatments
  3. Keela Too
    Post

    Electrolytes

    Interesting. I make up my own electrolyte solution, however this seems to be more about amino acids than salts? I found the Scivation Xtend on...
    Post by: Keela Too, Oct 12, 2019 in forum: Other treatments
  4. Keela Too
    Post

    Abnormal blood lactate accumulation during repeated exercise testing in ME/CFS, 2019, Lien et al

    Sorry - should also have said that this is a very interesting paper, showing clear differences in how ME peeps react to exertion.
    Post by: Keela Too, Oct 12, 2019 in forum: ME/CFS research
  5. Keela Too
    Post

    Abnormal blood lactate accumulation during repeated exercise testing in ME/CFS, 2019, Lien et al

    Can anyone explain to me why the p values I’ve highlighted the graphs on pages 6 & 7 are so low? Surely those p values should not be so low? Or...
    Post by: Keela Too, Oct 12, 2019 in forum: ME/CFS research
  6. Keela Too
    Post

    To pay attention - The brain uses filters not a spotlight.

    I haven’t managed to read it all yet, but this looks really interesting. Presumably applying filters to incoming information is an active...
    Post by: Keela Too, Oct 1, 2019 in forum: Other health news and research
  7. Keela Too
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    As a student I found touching my toes nigh on impossible. I was fit, healthy and did all that ‘80s Aerobics stuff complete with leotard and leg...
    Post by: Keela Too, Sep 10, 2019 in forum: ME/CFS research news
  8. Keela Too
    Post

    Hope 4 ME & Fibro Northern Ireland event (Wed 4th September 2019): New Frontiers in M.E. -Transforming Patient Safety & Care

    I understand the event was professionally videoed. Sadly I couldn’t be there, but I’m looking forward to the release of the DVD in due course. :)
    Post by: Keela Too, Sep 7, 2019 in forum: General ME/CFS news
  9. Keela Too
    Post

    Exploring the validity of the chalder fatigue scale in chronic fatigue syndrome - 1998 Morriss et al

    Thank you!
    Post by: Keela Too, Sep 4, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Keela Too
    Post

    Exploring the validity of the chalder fatigue scale in chronic fatigue syndrome - 1998 Morriss et al

    Interesting. Do you have a link to the trial?
    Post by: Keela Too, Sep 4, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Keela Too
    Post

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    Oops Adam got there first. LOL I must have dawdled with my post, cos I only saw Adam’s one after posting mine!
    Post by: Keela Too, Sep 1, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  12. Keela Too
    Post

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    @daftasabrush Three patient reps are on S4ME - myself, @adambeyoncelowe and @saranbonser . We are not hiding our details, nor blocking PMs. So it...
    Post by: Keela Too, Sep 1, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  13. Keela Too
    Post

    UK advocacy, campaigning what’s happening?

    It’s a good post @Samuel - don’t delete it. I get your points about the severe too. Any of us could go there - we just don’t know what’s round...
    Post by: Keela Too, Aug 29, 2019 in forum: General Advocacy Discussions
  14. Keela Too
    Post

    ME/CFS success story: Lightning Process on Youtube 2019

    @JoanNI :-)
    Post by: Keela Too, Aug 22, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  15. Keela Too
    Post

    ME Association: Very Severe ME: It’s Time for Something New! By Greg Crowhurst

    :cry: Thank you Greg. Sobering to read, but so important that these things are said. xx
    Post by: Keela Too, Aug 16, 2019 in forum: General ME/CFS news
  16. Keela Too
    Post

    Activity baseline vs activity ceiling, why concepts and language matter

    I really do like the energy ceiling idea - and the budget one too. As for a baseline - well as others have said that implies that a baseline is...
    Post by: Keela Too, Aug 13, 2019 in forum: General ME/CFS news
  17. Keela Too
    Post

    SCOPE : Q&A about chronic fatigue or Myalgic Encephalomyelitis (ME/CFS) with Dr Charles Shepherd

    THIS!
    Post by: Keela Too, Aug 10, 2019 in forum: General ME/CFS news
  18. Keela Too
    Post

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    I’m just on the iPad just now, but I’ll fire up the computer later and send you some stuff in a PM. PS... Edited to add, @RDP I just watched your...
    Post by: Keela Too, Aug 9, 2019 in forum: ME/CFS research news
  19. Keela Too
    Post

    Relationship satisfaction, communication self-efficacy, and chronic fatigue syndrome-related fatigue, 2019, Milrad et al

    I had to look up AYFKM!
    Post by: Keela Too, Aug 5, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Keela Too
    Post

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    @lunarainbows - I find your experience horrific. There are too many of these tales. I will PM you now. Xx
    Post by: Keela Too, Aug 2, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
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