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  1. Keela Too
    Post

    Hope 4 ME & Fibro Northern Ireland annual conference, Monday 17th September 2018

    [MEDIA]
    Post by: Keela Too, Sep 26, 2018 in forum: General ME/CFS news
  2. Keela Too
    Post

    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    Yes she has a volunteer now. Travelling from London no less. [MEDIA]
    Post by: Keela Too, Sep 26, 2018 in forum: Advocacy Action Alerts
  3. Keela Too
    Post

    Berkeley Wellness: When Medical Symptoms Are Dismissed as "All in Your Head" (David Tuller interviews Maya Dusenbery)

    I was about to say something like this. I suspect this could be a reason that men with ME get treated so badly. How dare these men let down men...
    Post by: Keela Too, Sep 26, 2018 in forum: General ME/CFS news
  4. Keela Too
    Post

    Ask Dr Ellie Cannon recommends GET - Mail on Sunday

    I think tests are only discouraged after disgnosis. Initial tests to rule out other possibilities are recommended. But if those tests don’t pick...
    Post by: Keela Too, Sep 24, 2018 in forum: General ME/CFS news
  5. Keela Too
    Post

    The ME Association's continued support of the Sussex ME Society

    THIS! 100 times this!
    Post by: Keela Too, Sep 23, 2018 in forum: General ME/CFS news
  6. Keela Too
    Post

    David F Marks: Psychology - Science or Delusion?

    He blames psychology. Is psychiatry any better?
    Post by: Keela Too, Sep 22, 2018 in forum: General ME/CFS news
  7. Keela Too
    Post

    PACE as a teaching tool - Discuss PACE in "Design and Interpretation of Clinical Trials" free online course by Johns Hopkins University on Coursera

    I didn’t keep up either @Clara Such is life :angelic:
    Post by: Keela Too, Sep 22, 2018 in forum: Advocacy Projects and Campaigns
  8. Keela Too
    Post

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    Yes - and this type of fatigue research should not be described as ME research. It should not suck up funding that could otherwise be used on ME...
    Post by: Keela Too, Sep 20, 2018 in forum: General ME/CFS news
  9. Keela Too
    Post

    Simon Wessely: ‘ECT is in my own advance directive’

    I’ve been dipping into this debate occasionally. I hate the very thought of this type of treatment, BUT I have also seen it be highly effective...
    Post by: Keela Too, Sep 20, 2018 in forum: Other health news and research
  10. Keela Too
    Post

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    It was advertised in June. Applications closed in July. Several on here applied.
    Post by: Keela Too, Sep 19, 2018 in forum: General ME/CFS news
  11. Keela Too
    Post

    Bristol - New Network - Prof Munafo

    Ask for this too. Or offer to meet. :)
    Post by: Keela Too, Sep 19, 2018 in forum: Open Letters and Replies
  12. Keela Too
    Post

    David Tuller: Trial By Error: So What's Happening with the MAGENTA Trial?

    @Esther12 So this feasibility study game seems to be a blatant attempt to have the full trial (that the feasibility study gets rolled into)...
    Post by: Keela Too, Sep 18, 2018 in forum: General ME/CFS news
  13. Keela Too
    Post

    Hope 4 ME & Fibro Northern Ireland annual conference, Monday 17th September 2018

    The event was incredible!!!!
    Post by: Keela Too, Sep 18, 2018 in forum: General ME/CFS news
  14. Keela Too
    Post

    A general thread on the PACE trial!

    I don’t actually think statisticians are generally to blame for this. Although it would be good if they all insisted on caution being applied to...
    Post by: Keela Too, Sep 17, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  15. Keela Too
    Post

    Michael Sharpe skewered by @JohntheJack on Twitter

    It’s the irony!
    Post by: Keela Too, Sep 17, 2018 in forum: General ME/CFS news
  16. Keela Too
    Post

    Name and shame list of institutions and psychiatrists/psychologists/pediatricians coercing exercise therapy on unwilling ME/CFS patients

    I think also we want some of those folk who have been applying GET under the direction of their seniors, to feel that they can pause and take a...
    Post by: Keela Too, Sep 15, 2018 in forum: General Advocacy Discussions
  17. Keela Too
    Post

    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    Just saw this on meta-analyses. Have to say I tend to agree! [MEDIA]
    Post by: Keela Too, Sep 14, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  18. Keela Too
    Post

    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    Here’s a thought. Bear with me. . . My background is biology, and as a student, when surveying plants in the wild, we always used quadrats that...
    Post by: Keela Too, Sep 14, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  19. Keela Too
    Post

    Patient perceptions of post exertional malaise, 2018, Jason et al

    Exactly @andypants and this could also be a reason GET seems to work. Therapist hat on: Take several weeks to “establish a baseline”, and...
    Post by: Keela Too, Sep 12, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Keela Too
    Post

    Patient perceptions of post exertional malaise, 2018, Jason et al

    Totally. I can succumb either from a single over-exertion, or from a slow accumulation of little extra amounts of exertion. The latter is the...
    Post by: Keela Too, Sep 12, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
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