Yes, I think we all agree there. However, we want to keep on-side the GPs and others who have simply followed the guidelines. If GET & CBT could...
I worry about this notion of “perceived fatigue” or “perceived effort” being used anywhere near ME (or any illness actually)! The body gives...
The lay member applications closed in June x Edit - or was it they opened in June and closed in July? Think the latter actually.
@JoanNI See above. Another person worth contacting re Hope conference?...
From website linked above: Team Foggy no longer fundraise for the ME Association but this is what we do. Foggy’s adventures will continue! On...
A long harrowing read. However complaint report gives hope for better care in future. Well said Christine Fenton....
The trouble with studying harms of GET, are that: - Those who believe GET causes no harm can carry out studies, but they are not careful about...
[MEDIA] [MEDIA] [MEDIA]
It’s almost getting to the stage that any slur they hurl at us, is effectively an admission of their own guilt of that very thing. So they say we...
I’ve tweeted the author, just to see if he expresses any opinion on MUS & IAPT [MEDIA]
However this should also mean she could be resistant to pressure from the BPS cabal? Unfortunately she seems to see them as being “right” - not...
In some ways it’s a simplification. Each patient gets one of four management options. Part of which might be managed by the secretaries behind...
Sure a load of stakeholders said GET should go, but NICE themselves haven’t yet changed their recommendation for GET. Sadly.
Agree, to some degree @Trish However, if a “process” is required to replace the IAPT & MUS processes, then I’d rather support something like...
This came up on Twitter, and although it mostly relates to diabetes, I thought a process like this could perhaps be useful for ME patients....
Nope! Not a bother with this for me! :geek: Slices of butter; hunks of cheese; double cream; never trimming the fat off bacon; loads of mayo on...
In USA the total carbs would be recorded as 22g. Ie they add the fibre to the carb count as well, whereas here in UK fibre is not added in the...
The drug I took, is a reverse transcriptase inhibitor. So maybe there is something still to explore?
Absolutely x However I do know of others who improved. Also others who didn’t. So yeah nothing yet that is sufficient evidence.
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