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  1. Keela Too
    Post

    Passive transfer of fibromyalgia symptoms from patients to mice, 2021, Goebel et al

    As I understand it, the removal of blood is not going to change the concentration of what remains. The blood volume will be reduced of course,...
    Post by: Keela Too, Jan 8, 2023 in forum: 'Conditions related to ME/CFS' news and research
  2. Keela Too
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    This is an excellent idea!
    Post by: Keela Too, Jan 6, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  3. Keela Too
    Post

    Snippets from White P et al. "Eight major errors in the review process and interpretation of the evidence in the NICE guideline [...]" [for ME/CFS]

    Just finished watching the video @adambeyoncelowe & @dave30th BRILLIANT!! Well done
    Post by: Keela Too, Dec 30, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  4. Keela Too
    Post

    Snippets from White P et al. "Eight major errors in the review process and interpretation of the evidence in the NICE guideline [...]" [for ME/CFS]

    @adambeyoncelowe I am so glad you are taking all this on! I just find I’ve not got the emotional energy!! Thank you.
    Post by: Keela Too, Dec 30, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  5. Keela Too
    Post

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I used Loop earplugs today when eating with my large lively family. Definitely helped me stay longer at the table, and also be able to talk to...
    Post by: Keela Too, Dec 25, 2022 in forum: Hypersensitivity and Intolerance Reactions
  6. Keela Too
    Post

    The Rise and Fall of Peer Review, 2022, Mastroianni

    I think the big problem is that peer review is done by peers! People in any specific area of research all have a collaborative approach to taking...
    Post by: Keela Too, Dec 23, 2022 in forum: Research methodology news and research
  7. Keela Too
    Thread

    The Rise and Fall of Peer Review, 2022, Mastroianni

    https://experimentalhistory.substack.com/p/the-rise-and-fall-of-peer-review The rise and fall of peer review Why the greatest scientific...
    Thread by: Keela Too, Dec 18, 2022, 27 replies, in forum: Research methodology news and research
  8. Keela Too
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    Done ✅ Hopefully a flurry of donations in the last few days will see the target met.
    Post by: Keela Too, Oct 28, 2022 in forum: Fundraising
  9. Keela Too
    Post

    Is there an association between insecure attachment & symptom severity in FSDs, & what is the role of mentalized affectivity, 2022, Airey

    Or perhaps an association could not be established because- you know - there isn’t one. I can’t believe they don’t even recognise this as a...
    Post by: Keela Too, Oct 19, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Keela Too
    Post

    Insights from the Physiology of Post-Exertional Symptom Exacerbation by Dr. Todd Davenport

    This quote is SO important. Is it in a published paper anywhere yet? Many papers have stopped short of saying this. Here’s hoping they can...
    Post by: Keela Too, Oct 9, 2022 in forum: Post-Exertional malaise and fatigue
  11. Keela Too
    Post

    Poll - In your opinion, is it worth experimenting with therapeutics of unknown efficacy?

    I’ve not tended to try “therapies” as such but I’ve changed up lots of things. Diet (low carb, unprocessed foods) Electrolytes (which I don’t...
    Post by: Keela Too, Oct 8, 2022 in forum: Drug and supplement treatments
  12. Keela Too
    Post

    Poll - In your opinion, is it worth experimenting with therapeutics of unknown efficacy?

    I too am reluctant to check one or other box. I obviously HAVE tried a multitude of different things - haven’t we all! However, I am very...
    Post by: Keela Too, Oct 8, 2022 in forum: Drug and supplement treatments
  13. Keela Too
    Post

    Trying the antiretroviral drug Tenofovir

    PS I should add that the migraines I got while taking Tenofovir were significant and a limitation in themselves. I had been told not to take...
    Post by: Keela Too, Oct 8, 2022 in forum: Drug and supplement treatments
  14. Keela Too
    Post

    Trying the antiretroviral drug Tenofovir

    Hi Chillier, Yes I took Tenofovir. It was not cheap at the time - I think about £300 a month! I was on it for a year. Perhaps it is easier to...
    Post by: Keela Too, Oct 8, 2022 in forum: Drug and supplement treatments
  15. Keela Too
    Post

    Activity monitoring and patient-reported outcome measures in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients, 2022, Rekeland et al

    The point about the “maximum difference” is interesting. I’m assuming that means how much more the high activity days are than the average days....
    Post by: Keela Too, Sep 21, 2022 in forum: ME/CFS research
  16. Keela Too
    Post

    Combination of whole body cryotherapy with static stretching ... reduces fatigue and improves functioning of the [ANS] in CFS, 2022, Kujawski et al

    I wonder how this extreme cold air treatment might compare to moderate cold water treatments? A daily cold shower is much more accessible. And...
    Post by: Keela Too, Sep 8, 2022 in forum: ME/CFS research
  17. Keela Too
    Post

    Physical therapists have a lot to learn about post-viral fatigue in the wake of a “tsunami” of long COVID patients

    I think we are saying the same thing really. It is the ME that is the limiting factor. If I was suddenly cured of ME I would do more from day...
    Post by: Keela Too, Sep 7, 2022 in forum: General ME/CFS news
  18. Keela Too
    Post

    Physical therapists have a lot to learn about post-viral fatigue in the wake of a “tsunami” of long COVID patients

    Let’s be honest though. Even if I became fully clear of ME tomorrow, I would not be instantly returned to my fitness level prior to ME. Ten...
    Post by: Keela Too, Sep 7, 2022 in forum: General ME/CFS news
  19. Keela Too
    Post

    Pelvic transvaginal ultrasound - what's it like?

    I had one. Definitely less uncomfortable than a cervical smear!! So yes description seems right, it was certainly less difficult than I...
    Post by: Keela Too, Aug 19, 2022 in forum: Other specific illnesses
  20. Keela Too
    Post

    Effect on bone anabolic markers of daily cheese intake with and without vitamin K2: a randomised clinical trial, 2022, Helge Einar Lundberg

    Sheep's milk cheese is yummy. And goat’s too.
    Post by: Keela Too, Aug 17, 2022 in forum: Other health news and research
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