Thank you Mary for all your hard work on this and other ME/CFS issues.
An existing WebMD article on ME/CFS titled "The Scoop on Chronic Fatigue Syndrome" had misquoted the IOM report. I set out to change that, and...
When I was collaborating with Healthwise to remove GET and CBT from the Kaiser Permanente website, it took several months for the update to appear...
https://browserleaks.com/ip Yeah probably a real IP. Doesn't appear to be a VPN or Tor exit node. Not sure why Cort didn't simply delete the...
James Coyne tweets his opinion. [ATTACH]
Thanks. I'll modify the title to try to clarify.
It astonishes me this was written in 2019. No mention of ME/CFS biomedical research papers, but Elle magazine is cited. So there's that. Chronic...
As we learn more about Montoya, I can't help but see parallels with nearby UC Berkeley astronomy professor Geoffrey Marcy just a few years ago....
San Francisco City Hall. [ATTACH]
Got an email from GARD (NIH) this week. They agreed to remove the statement that, in most cases, symptoms of CFS lessen over time. The relevant...
The KPAX002 ME/CFS study of Ritalin (methyphenidate) combined with a mitochondrial supplement formula was not found superior to placebo, despite...
In the United States, the National Academy of Medicine, CDC, NIH and NY State Department of Health all refer to ME/CFS as a "disease".
Kaiser Permanente Northern California now allows doctors to give a ICD-10-CM G93.3 "Myalgic Encephalomyelitis" diagnosis. In the past, it's only...
Can I shop with my rabbits? Shopping bag in one hand, rabbit in the other. It could be extra useful in the produce section.
@Medfeb
Always low expectations for Komaroff, who is editor for UpToDate's improved but still-awful CFS section. UpToDate still hasn't completely rejected...
I'm finding the low definition stream more reliable than the HD stream. If you're having frequent dropouts in the video, try turning off HD.
That said, I do hope Kaiser Permanente hires an ME/CFS specialist, particularly to help care for severe and very severe patients, and to help...
For better or worse, the CDC says the primary care physician can develop and implement a treatment plan. This isn't the end game. But it's a...
Yes, certainly short term fluctuations too. But the overarching multiyear relapse/partial remit periods were very obvious to me long before I was...
Separate names with a comma.
