Good points. I'd suggest directing questions to the email in the letter. As I understand it, Stanford is recruiting patients, but is still working...
I verified with Stanford that it was ok to share with other patients. This Montoya study is on exercise, the human microbiome and ME/CFS, and...
The search results have been fixed on the main Kaiser Permanente website. A search of Kaiser Permanente's website for "ME/CFS" no longer returns...
Since I've posted a lot of partial updates, a quick current summary: On the Kaiser Permanente main website: The GET and CBT content was removed...
Since the search didn't automatically update, this is what needs to happen. Healthwise will discuss directly with Kaiser Permanente to remove or...
Yes, I upped the probiotic dose to get more effect. The routine I settled on was snorting about a quarter teaspoon of the powder up each nostril...
Kaiser Permanente will have a regional director in person at the NIH meeting.
Unrelated, but I found it curious the CDC can perform a preliminary flu disease burden estimate while still in the middle of flu season... but...
Got a call from the NIH this morning. They are doing phone interviews of people who signed up for the PEM focus group. The NIH did not say what...
This was a 2 part study. That confused me at first. According to Medical News Today: In the mouse experiment, 12 weeks of following a...
Inorganic phosphate, an additive and preservative used in up to 70% of foods in the common American diet, may reduce the ability to exercise....
It's 2019. How can AfME say the immune system is only "possibly" involved in ME? :banghead:
It's also the realization by some doctors internally that "oh shit, these people are really really sick and we've been dismissing them for years...
From what I'm hearing, this paper is having a significant impact internally at Kaiser Permanente.
Just as an aside, the CDC states that ME/CFS is most common in ages 40-60 (Wikipedia also quotes the CDC on this). A source is not given. Edit:...
[MEDIA]
The Undiagnosed Disease Network has a call for gene function study proposals. Outside organizations can apply. Deadline is Feb. 28, 2019. "The...
True. But what if the offending pages actually still exist on the server and are being indexed, while http requests for the pages are being...
Also, some regional Kaiser Permanente websites still have very old Healthwise content that, of course, still mentions CBT/GET. Eventually these...
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