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  1. Webdog
    Post

    Could disease labelling have positive effects? An experimental study exploring the effect of the CFS label on intended social support, 2018, Noble

    From the 2015 IOM/NAM report:
    Post by: Webdog, Dec 18, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  2. Webdog
    Post

    Estimating Prevalence, Demographics and Costs of ME/CFS Using Large Scale Medical Claims Data and Machine Learning, 2018, Valdez, Proskauer et al

    Using the current US population, a prevalence of 857/100,000 calculates to roughly 2.8 million. That's 7x the prevalence of MS. I do find that...
    Post by: Webdog, Dec 18, 2018 in forum: ME/CFS research
  3. Webdog
    Post

    Healthwise to "retire the GET/CBT topics" from medical content

    The orphaned GET/CBT pages have been scheduled to be removed in a special January 2019 Healthwise content update (seems to be an interim update...
    Post by: Webdog, Dec 17, 2018 in forum: Advocacy Projects and Campaigns
  4. Webdog
    Post

    Golden hour (/month)

    Used to have a "golden hour" in fall. Spring was my worst season. But that stopped about 20 years ago. It's pretty much crappy all year round now,...
    Post by: Webdog, Dec 16, 2018 in forum: General and other signs and symptoms
  5. Webdog
    Post

    Medscape: "New Clinical Practice Guidelines, August 2018 Edition"

    But the 2015 IOM (NAM) proposed diagnostic criteria actually say: So, is it substantial functional impairment with fatigue (IOM), or fatigue...
    Post by: Webdog, Dec 13, 2018 in forum: General ME/CFS news
  6. Webdog
    Post

    Healthwise to "retire the GET/CBT topics" from medical content

    Thanks for letting me borrow your cape!
    Post by: Webdog, Dec 11, 2018 in forum: Advocacy Projects and Campaigns
  7. Webdog
    Post

    Cochrane Exercise Review Withdrawn - Individual Patient Data

    UpToDate still cites PACE and Cochrane as "evidence" to recommend GET/CBT as beneficial for some patients in their Nov 2018 literature review....
    Post by: Webdog, Dec 10, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  8. Webdog
    Post

    Healthwise to "retire the GET/CBT topics" from medical content

    I am really excited that Solve is talking with Kaiser Permanente. I truly think this is an approach outside of government that could speed up...
    Post by: Webdog, Dec 8, 2018 in forum: Advocacy Projects and Campaigns
  9. Webdog
    Post

    Healthwise to "retire the GET/CBT topics" from medical content

    Good to hear. Getting Kaiser Permanente's Division of Research interested in ME/CFS has been a long term goal for me. Kaiser has the 2nd largest...
    Post by: Webdog, Dec 8, 2018 in forum: Advocacy Projects and Campaigns
  10. Webdog
    Post

    Healthwise to "retire the GET/CBT topics" from medical content

    This is a big win for Kaiser Permanente members with ME/CFS. But Kaiser Permanente physicians aren't bound by what the website (Healthwise) says,...
    Post by: Webdog, Dec 8, 2018 in forum: Advocacy Projects and Campaigns
  11. Webdog
    Post

    Healthwise to "retire the GET/CBT topics" from medical content

    If you are on Twitter, consider thanking @Healthwise for removing Graded Exercise Therapy and Cognitive Behavioral Therapy from their ME/CFS...
    Post by: Webdog, Dec 7, 2018 in forum: Advocacy Projects and Campaigns
  12. Webdog
    Post

    Healthwise to "retire the GET/CBT topics" from medical content

    Latest on my 3 remaining issues: Regarding the revision date, Healthwise says June 3, 2018 was the last time this content was medically reviewed,...
    Post by: Webdog, Dec 7, 2018 in forum: Advocacy Projects and Campaigns
  13. Webdog
    Post

    Healthwise to "retire the GET/CBT topics" from medical content

    Graded Exercise Therapy and Cognitive Behavioral Therapy are no longer recommended in the Healthwise content for ME/CFS on the Kaiser Permanente...
    Post by: Webdog, Dec 7, 2018 in forum: Advocacy Projects and Campaigns
  14. Webdog
    Post

    Healthwise to "retire the GET/CBT topics" from medical content

    The Healthwise Fall 2018 update still hasn't made it onto the Kaiser Permanente website. No one seems to know why it's taking so long. But it...
    Post by: Webdog, Dec 4, 2018 in forum: Advocacy Projects and Campaigns
  15. Webdog
    Post

    Healthwise to "retire the GET/CBT topics" from medical content

    Kaiser Permanente has interpreted my repeated requests for info about the delayed Healthwise update as a complaint. All good. I now have a...
    Post by: Webdog, Nov 29, 2018 in forum: Advocacy Projects and Campaigns
  16. Webdog
    Post

    Low-dose Naltrexone articles and experiences

    What @Alvin said. However, there was a 2010 pilot study in Multiple Sclerosis, which found "LDN was well tolerated, and serious adverse events...
    Post by: Webdog, Nov 29, 2018 in forum: Drug and supplement treatments
  17. Webdog
    Post

    Low-dose Naltrexone articles and experiences

    Insurance wouldn't cover compounded LDN for me and that got expensive fast. So I convinced my doctor to prescribe covered 50mg Naltrexone tablets,...
    Post by: Webdog, Nov 28, 2018 in forum: Drug and supplement treatments
  18. Webdog
    Post

    Low-dose Naltrexone articles and experiences

    I personally think LDN should be available to all ME/CFS patients who want to try it for brain fog, fatigue or pain. I'm trying to convince Kaiser...
    Post by: Webdog, Nov 28, 2018 in forum: Drug and supplement treatments
  19. Webdog
    Post

    Healthwise to "retire the GET/CBT topics" from medical content

    The Healthwise update on the Kaiser Permanente website is running late for some reason. I'm investigating as to why and trying to get a firm date,...
    Post by: Webdog, Nov 28, 2018 in forum: Advocacy Projects and Campaigns
  20. Webdog
    Post

    UpToDate ME/CFS information

    A copy of the reply. [ATTACH]
    Post by: Webdog, Nov 27, 2018 in forum: General ME/CFS news
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