Agree
@Michelle the onset of the menopause triggered a severe decline in my symptoms so I ended up having to use an electric wheelchair indoors. 8 years...
Why is he publishing this now and what is the large treatment trial? Is it GET-Lite with PROMS?
@PhysiosforME a useful paper regarding rehabilitation outcomes.
(Fezolinetant) is a hormone-free medication It's a neurokinin 3 (NK3) receptor antagonist and doesn't contain estrogen." Just posting this...
OI is a hugely significant symptom from the point of view of getting good clinical care.
For me there is the day to day malaise where you can still manage to do a very limited amount. The poison or toxic sensation completely inhibits...
I have severe me and needed surgery three years ago. I had an A4 sheet with 12 bullet points which my sister discussed with the admitting nurse,...
Some areas now have community geriatricians which is maybe why Helmsley suggested geriatric specialty.
I assume Andrew Goddard prescribes CBT for irritable bowel syndrome. Also clinical experience counts for very little if you only see tiny cohort...
This needs to be understood and emphasized more by advocates. Compare us to other illnesses where people are switched back on
Would it be possible to get a presentation of some kind at a rheumatology conference? Brian Hughes is excellent on PACE and philosophy! Caroline...
Hope4ME and @JoanNI have been the driving force behind this project
Do we need a global database of these cases that is updated annually?
Why not start with a trial to measure blood volume ? Was this ever discussed at the research working group @Jonathan Edwards
@Caroline Struthers are there any drugs affecting cerebral blood flow that could be tested in your trailblazer trial? Pyridostigmine does not...
I would like to see this study on GDF15 replicated. https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-019-02153-6 Forum...
Earlier there was a post by @Jonathan Edwards about intolerance. I wish that we had persevered with SEID for use by healthcare professionals....
Merged thread I have suffered from migraine for 40 years and severe ME for 30 years. I am eligible for a trial of rimegepant as a prophylactic...
Rivastigmine crosses the blood brain barrier unlike pyridostigmine. Could it be of any therapeutic benefit to us? @Jonathan Edwards @SNT Gatchaman
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