@lunarainbows I spent 90 minutes in Karma VIP2 at hospital for tests. Extremely comfortable. I'm 157cm so my head reaches headrest ok, legs and...
Mine arrives today. Will let you know.
https://www.karmamobility.co.uk/product/vip2-transit-tilt-in-space-and-recline-wheelchair/
I wrote to our BBC NI health correspondent and UTV , so far nothing.
Hoping for mentions in Belfast Telegraph and Newsletter this week, following contacts with journalists. @Keela Too
Lots of dissatisfaction among doctors about " lifestyle medicine", various tweeter feeds.
Moderator note. This post has been split from this thread:...
Response about DecodeME from leading GP in N Ireland "I really welcome this research to unpack this complex condition which impacts so many lives...
Presumably anyone with long-term LongCovid who meets ME criteria could be eligible?
What happens in 3 months time? "Oh you've been under/ overactive ( RCGP advice), now you need GET." Backed up with media articles by Sharp....
@PhysiosforME Do you know if CSP has any information on PEM in its policy document on Covid19 rehabilitation? I've no energy to read the whole thing.
OI is common in multiple sclerosis, so a control group of MS patients in any ME OI trial could be interesting.
910 downloads to date. A broad mixture of healthcare professionals and 97% said that they would recommend it.
@Kalliope I had similar experiences with SSRIs ,if that's any help.
Dreadful experience. Started on 0.1mg, then 0.2mg. Only managed 10 days as it made me very irritable and aggressive (I'm very patient normally),t...
@Hutan the timeout of 15 minutes is standard for any chronic disorder in UK, not just CFS.
"Susan O Shea is leading the organisation of the Nurses for ME branch of the education working group. The TOR (terms of reference) would be along...
I'll contact Nina
Dr Nina Muirhead is trying to establish NurseforME if anyone is interested.
@PhysiosforME I,have been in contact with the lead physiotherapist drafting the Covid19 rehabilitation in N Ireland, and have sent through all...
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