So AI is better than CBT alone. Not that much of a win! “We’re very excited about the results of this study, because we were able to demonstrate...
Wonder how much reearch money will be wasted this time?
So sorry to hear this @BrightCandle
Maybe one for @dave30th
The JLA (James Lind Alliance) PSP (Priority Setting Partnership) used the acronym MNYES: "Medically Not Yet Explained Symptoms represent up to...
The clinic is in effect run by Anna Gregorowski, clinical nurse consultant, with a PhD in: Yes you guessed it - treating Adolescents with CFS and...
@Amw66 can you raise this with your Scottish colleagues,as it was part funded by a Scottish org?
I think that Dr Systrom's involvement in ME is relatively recent, so I am not totally surprised that he is still unclear about some aspects. The...
In one of the parents' groups I'm in, I noticed a few years ago that ones who were able to get tested for POTS and get suitable meds improved...
AN excellent honest perspective of the effect of the pandemic on NHS staff
Her later tweets don't sound v encouraging. Emma Williams - UoM ME/CFS researcher @MECFSatUoM · 17 Jul Myalgic Encephalomyelitis, also called...
Well the link from their website to the "essential Fatigue management programme" below, is now showing "404 Page not found" Maybe they are...
Well as we all know, parts of this are out of date! "Supporting NHS staff with Long COVID Feedback from the Post-COVID Assessment Clinics...
Once again, rehab is the answer, regardless of the physiology.
@Caroline Struthers Reminds me of the talks I went to at Guy's pre Covid, where Hilda Bastian had been due to speak.
A psychobubble world, where the money flows freely and eminence-based ideas are rewarded.
I cannot Like the above
Small fibre neuropathy has also been shown in PwME. I think by \annie Oaklander, alongside David Systrom's work on preload failure as well.
Looks like another huge waste of time and money. Surely Iranians would benefit from resources spent in other ways.
The funders and make up of the Steering Group meant this PSP was never going to help anyone except the Psychs
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