1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 3rd March 2025 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice

Search Results

Search Again
Page 17 of 22
  1. MEMarge
    Post

    ME/CFS services in the United Kingdom

    This post has been copied and the following discussion moved from the NICE guideline discussion thread. Anna Gregorowski is fully BPS and a...
    Post by: MEMarge, Nov 15, 2021 in forum: UK clinics and doctors
  2. MEMarge
    Post

    UK: Priority Setting Partnership for ME/CFS

    This one also seems key to me.
    Post by: MEMarge, Nov 10, 2021 in forum: Advocacy Projects and Campaigns
  3. MEMarge
    Post

    Supporting patients with long COVID return to work, 2021, Madan, Briggs and Chew-Graham

    Oh, if only PwME had good enough health to work, even part-time. "We" would love to have the money and other benefits it provides. How can these...
    Post by: MEMarge, Oct 30, 2021 in forum: Long Covid research
  4. MEMarge
    Post

    Fibromyalgia and ME/CFS: an interoceptive predictive coding model of pain and fatigue expression, 2021, Sharp et al

    He has moved to Cardiff Uni. He spoke at an AfME AGM where he was showing slides of brain activity. (Do not have notes to hand re type of imaging...
    Post by: MEMarge, Oct 29, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. MEMarge
    Post

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Great article @adambeyoncelowe.
    Post by: MEMarge, Oct 29, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  6. MEMarge
    Post

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Graham would have loved seeing an experienced and respected statistician commenting on this new GDL in the SMC. "Professional biography Kevin...
    Post by: MEMarge, Oct 29, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  7. MEMarge
    Post

    [Blog] BACME, NHS ME/CFS clinics shift from deconditioning to dysregulation model of ME/CFS in anticipation of updated NICE Guideline

    Post by: MEMarge, Oct 23, 2021 in forum: General ME/CFS news
  8. MEMarge
    Post

    Do adolescents w/CFS/ME & co-morbid anxiety &/or depressive symptoms think differently to those who do not have co-morbid psychopathology?,2020,Loades

    I love this view of the BPS cabal as slime mould.
    Post by: MEMarge, Oct 16, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. MEMarge
    Post

    United Kingdom: ME Association governance issues

    The problem is that even if the consultant heading up a CFS clinic understands the nature of ME, the only approach that can be funded by the NHS...
    Post by: MEMarge, Oct 13, 2021 in forum: Organisations relevant to ME/CFS and Long Covid
  10. MEMarge
    Post

    I need a good summary of the problems with mind-body theory

    The blogs by @Michiel Tack on illnesses that used to be assumed to be psychosomatic until their biology was understood might be helpful. Not...
    Post by: MEMarge, Oct 13, 2021 in forum: Other health news and research
  11. MEMarge
    Post

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

    For those who haven't managed to see the child in swimming pool yesterday, this is from 10.50 -12.02.
    Post by: MEMarge, Oct 13, 2021 in forum: Long Covid research
  12. MEMarge
    Post

    A general thread on the PACE trial!

    The first post is from a recent interview with Crawley recently, re the Clock trial for kids with long Covid. The 2016 one is for background info.
    Post by: MEMarge, Oct 11, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  13. MEMarge
    Post

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    Petition at 21,867.
    Post by: MEMarge, Oct 11, 2021 in forum: Petitions
  14. MEMarge
    Post

    Compression Garments

    Thanks for the ideas on Compression garments. Since about 2015, my daughter always sits with her feet on a stool when we are at home. So that's...
    Post by: MEMarge, Oct 10, 2021 in forum: Orthostatic intolerance treatments
  15. MEMarge
    Post

    United Kingdom: ME Association governance issues

    Does anyone here have the stamina/capacity to put some of this into an email that any of us who would like to, could sign as "concerned members"...
    Post by: MEMarge, Oct 8, 2021 in forum: Organisations relevant to ME/CFS and Long Covid
  16. MEMarge
    Post

    United Kingdom: ME Association governance issues

    So sorry you had this experience with him Ariel. A longstanding friend of mine, with ME saw about 25 years ago, also privately. He told her she...
    Post by: MEMarge, Oct 8, 2021 in forum: Organisations relevant to ME/CFS and Long Covid
  17. MEMarge
    Post

    World ME Alliance, was previously IAFME: International Alliance for ME

    This bit of the website is confusing: "The World ME Alliance calls upon WHO and its Member States to: Formally engage with the IAFME and its...
    Post by: MEMarge, Oct 5, 2021 in forum: News from organisations
  18. MEMarge
    Post

    IL-6 and hsCRP in Somatic Symptom Disorders and related disorders, 2021, van der Feltz-Cornelis et al

    Many UK papers are just as bad
    Post by: MEMarge, Oct 2, 2021 in forum: Other health news and research
  19. MEMarge
    Thread

    UK survey - Changes to eligibility for non emergency patient transport

    From PATIENTS ASSOCIATION Newsletter, They are collecting info on patient experience via a short survey (closes this w/e) "NHS England has...
    Thread by: MEMarge, Oct 1, 2021, 1 replies, in forum: General disability topics and advocacy
  20. MEMarge
    Post

    Concerns about Cochrane

    Interesting that 4 of the 5 references include P Glasziou, who is/was supervisor for Hilda Bastian's PhD
    Post by: MEMarge, Sep 22, 2021 in forum: Other health news and research
Showing results 321 to 340 of 438 Next >
Search Again
Page 17 of 22