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  1. MEMarge
    Post

    Discussion of suggestions for the ME/CFS Priority Setting Partnership, deadline 5th July - extended to 7th July.

    We haven't seen much of this in the replies coming thro so far. A few offensive comments about PwMe have been put in the "out of scope" section...
    Post by: MEMarge, Jul 5, 2021 in forum: Advocacy Projects and Campaigns
  2. MEMarge
    Post

    Discussion of suggestions for the ME/CFS Priority Setting Partnership, deadline 5th July - extended to 7th July.

    [IMG]
    Post by: MEMarge, Jul 5, 2021 in forum: Advocacy Projects and Campaigns
  3. MEMarge
    Post

    Discussion of suggestions for the ME/CFS Priority Setting Partnership, deadline 5th July - extended to 7th July.

    Deadline is todayat 5. Any final thoughts, ideas, research questions https://www.psp-me.co.uk/take-part/ [IMG]
    Post by: MEMarge, Jul 5, 2021 in forum: Advocacy Projects and Campaigns
  4. MEMarge
    Post

    Use of sildenafil (viagra) to alter fatigue, functional status and impaired cerebral blood flow in ... CFS, 2020, Friedman (Pfizer)

    Sorry to hear that the ME is so bad these days @deleder2k sending hugs.
    Post by: MEMarge, Jun 27, 2021 in forum: ME/CFS research news
  5. MEMarge
    Post

    Discussion of suggestions for the ME/CFS Priority Setting Partnership, deadline 5th July - extended to 7th July.

    Have contacted the JLA re this. (JLA = James Lind Alliance, who are the small team who run the PSPs for all diseases. They provide the survey...
    Post by: MEMarge, Jun 22, 2021 in forum: Advocacy Projects and Campaigns
  6. MEMarge
    Post

    Active placebos versus antidepressants for depression, 2004, Moncrieff, Wessely, Hardy

    I must be missing something here: The review is published in 2004, but their evidence search was in 2008? "To investigate the efficacy of...
    Post by: MEMarge, Jun 19, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. MEMarge
    Post

    Performance Validity and Outcome of Cognitive Behavior Therapy in Patients with Chronic Fatigue Syndrome, 2021, Knoop et al

    Just one more thing they don't understand!
    Post by: MEMarge, Jun 19, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. MEMarge
    Post

    UK: NICE Guideline: Shared decision making, published June 2021

    This is good timing, with ME GDL coming out in Aug.
    Post by: MEMarge, Jun 18, 2021 in forum: Other guidelines
  9. MEMarge
    Post

    World Physiotherapy: Briefing paper 9: Long COVID, physical activity and exercise

    Good thing that the main BPS cabal are unlikely to apply. From the Person Specification. "Ability to manage effectively verbal aggression and...
    Post by: MEMarge, Jun 17, 2021 in forum: Long Covid news
  10. MEMarge
    Post

    2021 Pan-Europe ME Patient Survey (EMEA)

    Have contacted AfME to ask them to publicise this. What is the closing date @trudeschei ?
    Post by: MEMarge, Jun 17, 2021 in forum: Advocacy Projects and Campaigns
  11. MEMarge
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    GPs in general believe what is promoted by the various medical colleges. The teaching and narrative produced by those colleges is all based on the...
    Post by: MEMarge, Jun 17, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  12. MEMarge
    Post

    Spotlight on Long Covid webinar series, The Royal Society of Medicine

    Session 2 has some good speakers: Post-viral syndrome Professor Danny Altmann, Professor of Immunology at Imperial College London Long-term...
    Post by: MEMarge, Jun 16, 2021 in forum: Long Covid news
  13. MEMarge
    Post

    Trial By Error: CBT and Irritable Bowel Syndrome

    Actually a friend of mine who teaches in state secondary quite regularly gets pupils to mark each others' work, during a lesson, where she goes...
    Post by: MEMarge, Jun 15, 2021 in forum: Other psychosomatic news and research
  14. MEMarge
    Post

    Trial By Error: CBT and Irritable Bowel Syndrome

    Thanks @Sly Saint, you are supplying me with lots of holiday listening and viewing!
    Post by: MEMarge, Jun 15, 2021 in forum: Other psychosomatic news and research
  15. MEMarge
    Post

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Yuk. There is going to be another film which explains the process of recovery or something like that.
    Post by: MEMarge, Jun 10, 2021 in forum: Long Covid news
  16. MEMarge
    Post

    EXPLORER study: Exploring treatments for younger children with CFS/ME - Amberly Brigden, Esther Crawley

    Thanks @Andy, you put it so clearly... Presumably an earlier version of this: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7271909/ Medical...
    Post by: MEMarge, Jun 10, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  17. MEMarge
    Post

    EXPLORER study: Exploring treatments for younger children with CFS/ME - Amberly Brigden, Esther Crawley

    I don't follow what this sentence means: "Aim To develop an intervention for CFS/ME in 5-11 year olds, in line with MRC guidance."
    Post by: MEMarge, Jun 10, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  18. MEMarge
    Post

    Event: Depression (and anxiety) in Paediatric Chronic Fatigue Syndrome (CFS) - Dr Maria Loades, 28 Jan 2020

    Aaaaagh!:banghead::banghead::banghead::banghead::banghead:
    Post by: MEMarge, Jun 10, 2021 in forum: Psychosomatic news - ME/CFS and Long Covid
  19. MEMarge
    Post

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    " I obsessed about my symptoms. I ruminated about the causes. I began to wonder if I would ever recover." "Serendipity ultimately led to a path...
    Post by: MEMarge, Jun 10, 2021 in forum: Long Covid news
  20. MEMarge
    Post

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Extract from Guardian "An early attempt at an intensive online exercise class, when I felt momentarily better, sent me straight back to bed for a...
    Post by: MEMarge, Jun 10, 2021 in forum: Long Covid news
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