I spoke with both Bob's sisters and his Mum, following the funeral and we exchanged a few emails. I was keen to share what he had gone through...
For many people the cost of a prescription puts them off. Also those living on very low incomes may not have the money to buy a 3 or 12 month...
I tyhink David Strain isn interested in Ampligen
I have heard that the Liverpool CYP service is pretty much BPS. There were only 5 responses from there in the MEAction UK report for NICE gdl...
Also on their Facebook page. (21 hrs ago at 11am) ETA: Link on here goes to survey
The S4ME Committee have now signed this letter.
His comments in a letter to the BMJ in 2020 on the LC NICE GDL include some good comments: "The guidance mentions screening blood tests (such as...
I've asked on a parents' site if anyone has seen Crawley recently, linking to the acknowledgement in the BMJ paper. Was shocked, but not terribly...
Yes and the leaflets that are linked on the clinic website, #204 seem to be unchanged
@Old Monkey are you on the Facebook Group: Parents of children with ME/CFS support Group? https://www.facebook.com/groups/295809457153118 There...
I have heard of families being threatened with social serices if they don't do xyz. One example was a teen spending too much time on their phone!...
Let's hope she's not one of those doctors who needs to retire at 60 for pension purposes, then after a certain period, pops up again, eg in...
Wow, this could be Brilliant news, hopefully she has retired from any medical interaction with children. The Bath Clinic she runs/?used to run,...
If much of ST's work has been with strokes, i presume the average age would be higher. There may also be some problems with using some if...
Have been able to register, with my area of interest being medical education. I can access the webinar for £20. I'd certainly be interested in...
I wonder if recordings will be available afterwards @PhysiosforME
I totally agree that any physical activity, not just steps, is important and good to record. Also changes in heart-rate are relevant for those...
I did raise this at the end and the Physios for ME attending (Nikki Clague Baker and Karen Leslie) agreed this was important.
Some comments in the chat after Sarah talked re wearables were that other activities such as playing the piano or stroking the cat showed...
Tempting, but probably not productive...
Separate names with a comma.
