Posts moved from UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023 Excerpts from...
Have you previously had an email 2 weeks after you personally filled in the questionnaire @Trish, or two weeks after it has been taken down. I...
My daughter has not had regular significant pain Has now had ME for 13 1/2 years
The following extracts from the FAQ re a mental health PROM are not at all reassuring. Too many concerning statements to highlight. "How I feel...
Thanks for the work that you and others have done on this, @adambeyoncelowe
Summary from benefits and work newsletter re 2024 PIP changes Green Paper...
Interesting article from Medscape on brain training:...
I think this has been arranged by MEAction Scotland/UK, which probably explains why Jaime S is on the program.
Re youngsters (CYP =children and young people) "The chance of a partial or full recovery is better in children and young people with ME/CFS than...
At minimum they need to ask how much people can do in a week. Eg. I could have a shower or prepare a meal or xyz, twice a week on average.
This would be a very reasonable request. If there are any members of MEA left on here, they could ask. (Would probably be rejected immediately if...
Brilliant
For those, like me who didn't know what the Lacanian model of science is -#3 "For Lacan, science is about knowledge rather than “truth”, and the...
I doubt that many, if any other presentations will be available. I guess AfMe may be able to obtain some slides or info from Chris Strain's talk...
I went to a screening in Crowborough, E Sussex, which is where I first met the group started by the amazing and lovely Graham McPhee. There was a...
Their "Theory of Change Model"...
Link to a general participant info leaflet:...
Per the original draft programme for the one day conference, this was an option for one of the workshop sessions during the day: Workshops...
Further info about the conference, including participant bios: https://bacme.info/wp-content/uploads/2022/08/Programme_final2.pdf Looks as...
"Many people living with long covid are attempting to return to work, or stay in work, while learning to manage an emerging long term condition.2...
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