My daughter has recently had a letter from the clinic saying that her appt has been moved to April 2024, from this Nov. The letter said is would...
@Caroline Struthers
The NICE pain GDL were a disaster with a very biased GDL Development Committee
The introductory video on the link is not very encouraging. BPS, goals to work towards, boom and bust .....
Once again the useless Chalder Fatigue Scale appears
Thanks so much @Simbindi for all your helpful posts and others for their comments. Some of this will be useful for the Delivery Plan responses too
Sorry to hear re your worsening health as well. My daughter uses an ipad all the time and types using the screen. However cognitively she is...
I have done some work on this and obtained info via a JLA person. If I can locate it, I will see if it adds anything to the above, But we are...
Hi Andy, I think an easier way to approach this is to look at quoted funding for CFS, as it has been called!...
Prof Lobo is retiring before November this year. (May have already retired) I know this because we moved an appt with him to Nov. The clinic...
starts about 1hr 5 mins in.
Graham McPhee was working on a program of modified Stroop test, which included a second test after about 20 mins I think. He tested it on some...
From the conclusion of the paper: "Fatigue plays a significant role in MS and has a strong effect on disability and, for example, the retirement...
Now closed, by 2.45 on 31/7/23
Rhonda Knight is described as: "Rhonda Knight BACME Trustee and Patient Representative", as co-author of the BACME PEM leaflet. Her description...
BACME do have at least one person with ME, who also has at least one adult offspring with ME, as a member. ETA: Board members:...
Is ForwardME doing anything theses days?
So sorry to hear this @wastwater
This result could be useful in showing how useful accelerometry can be in disease states including ME. Maybe relevant for Sarah Tyson's study....
So much predictable c**p.
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