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  1. MEMarge
    Post

    UK House of Lords/ House of Commons Questions

    Hopefully ......
    Post by: MEMarge, Jun 16, 2023 in forum: General ME/CFS news
  2. MEMarge
    Post

    ELUCIDate Study: Bristol University

    Will be interesting to see what Long Covid kids group thinks of this. Also:...
    Post by: MEMarge, May 16, 2023 in forum: Long Covid research
  3. MEMarge
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Hi @sarahtyson, so pleased that you are on here and that your experience of working with Peter are so positive. I will repond more when I have time.
    Post by: MEMarge, May 10, 2023 in forum: ME/CFS research news
  4. MEMarge
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Just came across this paper by Gladwell and a couple of others, not overly encouraging....
    Post by: MEMarge, May 9, 2023 in forum: ME/CFS research news
  5. MEMarge
    Post

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    Nothing yet. I described myself as an ME advocate. Did you mention S4ME as they seem to be primarily wanting researchers, clinicians etc?
    Post by: MEMarge, May 9, 2023 in forum: ME/CFS research news
  6. MEMarge
    Post

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    I have just registered, will let you know. I am around more on Thursday than Friday
    Post by: MEMarge, May 9, 2023 in forum: ME/CFS research news
  7. MEMarge
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    So, that complaint was prior to NICE downgrading the "studies" on which it was based to "very low" or possibly just "low". Unfortunately GRADE...
    Post by: MEMarge, Apr 21, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  8. MEMarge
    Post

    Exercise Pathophysiology in ME/CFS and Post-Acute Sequelae of SARS-CoV-2: More in Common Than Not? 2023, Joseph, Systrom et al.

    Have just been able to download it. Noon, Friday
    Post by: MEMarge, Apr 14, 2023 in forum: Long Covid research
  9. MEMarge
    Post

    Cushing’s Disease Presenting with Functional Neurological (Conversion) Disorder 2023 Ashrafzadeh et al

    @Joan Crawford
    Post by: MEMarge, Mar 27, 2023 in forum: Other psychosomatic news and research
  10. MEMarge
    Post

    Autoantibodies targeting G protein-coupled receptors: An evolving history in autoimmunity. Report of the 4th international symposium

    "Anti-GPCR autoantibodies against the autonomic nervous system: from breast silicone implants to “dysautonomia” Seven clinical entities that...
    Post by: MEMarge, Mar 27, 2023 in forum: Other health news and research
  11. MEMarge
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Thanks Caroline
    Post by: MEMarge, Mar 23, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  12. MEMarge
    Post

    Degree of improvement in ME

    My daughter has got worse over the years. Charles Shepherd often uses the "degree of improvement over time". I wonder if it may refer to many...
    Post by: MEMarge, Mar 6, 2023 in forum: Epidemiology (incidence, prevalence, prognosis)
  13. MEMarge
    Post

    Severe difficulties with eating in ME/CFS

    Apologies if Professor Aziz has been mentioned already. He is "Professor of Neurogastroenterology and Director of The Wingate Institute of...
    Post by: MEMarge, Mar 1, 2023 in forum: ME/CFS research
  14. MEMarge
    Post

    Subjective and Objective Cognitive Impairments in Non-Hospitalized Persons 9 Months after SARS-CoV-2 Infection 2023 Kirchberger et al

    I wonder what these "effective interventions" are?
    Post by: MEMarge, Jan 22, 2023 in forum: Long Covid research
  15. MEMarge
    Post

    UK House of Lords/ House of Commons Questions

    The majority of " research done at Kings on CFS/PPS etc" rarely appears in responses to funding questions. (PPS =Persistent Physical Symptoms and...
    Post by: MEMarge, Jan 14, 2023 in forum: General ME/CFS news
  16. MEMarge
    Post

    UK House of Lords/ House of Commons Questions

    There seem to be several unfinished studies here: https://www.bristol.ac.uk/academic-child-health/research/research/cfsme/ Most don't specify...
    Post by: MEMarge, Jan 14, 2023 in forum: General ME/CFS news
  17. MEMarge
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Is this article relevant @Caroline Struthers? "Is my study useless? Why researchers need methodological review boards"...
    Post by: MEMarge, Jan 10, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  18. MEMarge
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Is it worth copying any of this to Professor Ken Stein at NIHR. "Director of the NIHR Evidence Synthesis Programme" (He was critical of...
    Post by: MEMarge, Jan 5, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  19. MEMarge
    Post

    United Kingdom: UKCRC (UK Clinical Research Collaboration) Subgroup on ME (part of the UK Government ME/CFS Delivery Plan)

    This is the latest information on the Delivery Plan
    Post by: MEMarge, Sep 20, 2022 in forum: News from organisations
  20. MEMarge
    Post

    General news about Fabricated and Induced Illness syndrome (FFI)

    @Amw66, do you have time to post this on any parebt FBs you are in. If not I'll do it tomorrow
    Post by: MEMarge, Aug 26, 2022 in forum: Other psychosomatic news and research
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