I hadn't realised Chronic Fatigue syndrome had been established in the UK by that date. I went to my dr asking if I had m.e in 1994, after being...
Nath seems openly still only interested in early intervention/ prevention and seems to be happy, as probably lbh many are if unchallenged, to just...
Not exactly m.e is defined by post exertional malaise and As physical as a broken leg is it.
He did publish a very similar one that got terrible reception previously and was well aware, by the sentences written, that this would sometimes too.
Yes, still , Rory is only one so far not to mention m.e & he chooses that totally apolitical statement , a guy whose job and media activity is...
interestingly the charity commission upheld no charges against the former version of The ME association in 2003, according to this...
I didn’t think that’s how it worked at the Appg AGM but I really have no idea
Does this mean there’s been no formal meeting of the trustees since the last AGM?
The MEA aCT AS if THE past 20 - 30 years of awful NHS management, pushing people on a downward spiral didn’t happen & an issue for those with this...
Some can. I have a normal care agency. It’s just run by a nurse but the care team do my tube feeding, meds and order my meds. And there is of...
Given we’ve had an APPG since 1998 With limited success - primarily 2 general reports published saying similar things ~ 20 years apart - just...
ok but that does not equally mean that meeting all the research needs of the long covid community meets all the research needs of the ME/CFS...
Nath Is making it clear NIH has essentially replaced researching ME/CFS with long covid, which He bizarrely describes as much more severe. Who...
RaisIng large sums and showing the reality of very severe ME and the unacceptability of abandoning these sufferers , as They did with ME, to...
America has some good guidance written 2023 by clinicians with experience with m.e , that is not so much relying on 100% gold standard evidence...
It’s talking about leading to a bigger NIHR study 25/26. I think there’s little there that could not have been done ten / twenty years ago,...
Haven’t the 3 basic models proposed for ME, & especially in the UK, been psychogenic (hysteria etc - dismiss it entirely) , biopsychosocial &...
To give context here For those who are not severe /Acutely aware of what people are facing in hospitals, this was written by the mother of Emily...
Aren’t we trying to reframe it as a biomedical model va the biopsychosocial? Rather than leaving it an empty space.
I don’t know but his current description at Exeter says he “participates“ in the chronic fatigue service but he is clinical lead for the long...
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