NIH funding plans for non covid ME/CFS https://www.healthrising.org/blog/2024/05/13/nih-chronic-fatigue-syndrome-whittemore/
An early DS interview when he became the face of long-covid. Long COVID – we’ve been here before...
I disagree partly, whilst for diagnosis I think that there is requirement for life to be significantly limited, as people improve, as some do,...
I see from twitter this has already been dealt with. No need to contribute.
These are examples of what NIHR were previously funding for ME/CFS (from searching s4ME forum) Paediatric chronic fatigue syndrome patients’ and...
I think that with The NIHR specifically, they have been having a two tier approach. Up until 2020, afaia the bulk of NIHR CFS funding was going to...
hi Aaron. How have you gotten on with this?
Thanks, that’s still constitutes government funding though?
MRC are funding the LOCOME project...
Yes, at the previous debate the minister replied that people could be in bed “for weeks“. If the ministers are not getting the severity then of...
I could not see the actual bit about disorders eating in your quote. I’m not sure, given how little the BACME/NHS services try to engage with ;/...
This is great. Has #MEACtion made any noises about this at all? Pretty baffling that a charity, whose raisin d’etre was once obtaining missing $$$...
Not really, if you’re just put on a general ward. Which most are from the start - there are often skylights and strip lights and Wards are busy...
The very severely affected case In the news is in Lancashire. BACME list 2 services for Lancashire - one is called CENTRAL LANCASHIRE MOVING WELL...
I think it’s clear more has to be done. the NICE guidelines have existed for some time, they are not stopping disbelief and harm and really why...
Not bad, needs to convey PEM & risk of harm at any exertion. It was probably written in less than five minutes too.
The ME association forgot to notify in advance too.
The ME association today Dr Charles Shepherd: Edited. They have had since October 2021.
I am not clear whether the update constitutes the anticipated March update or not? The charities spokeswoman said on Facebook a quote that it’s in...
Moved posts edited. it has been indicated on twitter that the NHS website has already had a rewrite as part of the DHSC plan. What we now read...
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