I actually think the letter is typically inoffensive and non boat rocking. It might achieve what they wanted to get out there but ... It kindly...
I think that’s why we need #MEAction. The main charities, especially AFME are built on the model of working with the establishment. AFME devotes a...
One thing un said is, for all his obvious faults with PACE, sir Peter spencer in 2011 did ask the MRC to continue ring fenced funding until the...
Superficially it’s welcome, at this time it removes an unhelpful leg of support from underneath the establishment, trying to maintain status quo....
Good old ed Sykes. I’m so glad he sat on the CMRC board and changed his views zero and helped us so much. Michael sharpe retweeted and liked it.
“The MRC has undertaken and is actively engaged in a number of strategic activities to promote and encourage research into the causes of this...
From the MRC website: https://mrc.ukri.org/news/browse/criticism-of-the-pace-trial/?utm_medium=email&utm_source=govdelivery Text of full...
MRC now have lengthier response on their website. Below for link. My response is this: Well regurgitated, lengthy BS doesn’t make it any better....
It isn’t to me surprising we are seeing this line from the MRC, after all we haven’t seen criticism of PACE from Stephen Holgate, in fact he...
Given we are currently waiting on news regarding a move from the MRC on CFS biomedical research I wonder If this suggests anything. Does the fact...
If that’s the case then complaints are warranted because changing the narrative that ME is CF is one of our key aims as we struggle for proper...
Wow, so not only does she do the ultimate insult, reduce it to chronic fatigue, thanks and how helpful, she turns this again into scaring off CFS...
Thanks for that old magazine issue information. Bit disappointing to see MEA true to form accepting of broadest criteria as a good starting point....
Is Jonathan Edwards correct that people aren’t objecting to psychological and exercise as treatment CFS research per se? I thought the MEA...
This in a nutshell, to link to another thread debate, sums up how CFS has been treated , which is not that it has a serious biological basis. It’s...
I thought this same journalist had covered this story a while back. If the Lancet are just going to sit on their hands as long as they can and...
Generally it’s a very good article, helps to raise awareness. “● The effects of M.E. are devastating enough to leave 25% of patients housebound...
I guess trudie is informing the youngsters that they can recover in 6-12 months if they follow her treatment. Any “deviation “ from this is...
I was really moved to see Jamieson struggling to communicate and think he’s to be applauded for showing himself clearly weakened and impacted. The...
This is what irritates me on ME research, we shouldn’t be spending years discussing hypotheticals, we can either use the tools out there to assess...
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