The ME association xmas appeal was for advocacy and information rather than research. I assume that has been used to cover more of these costs....
They were available to download even if some were paid for - it wasn’t just so they could be sent but an income stream.
it blurs over how in the strong difference of opinion, what clinicians and patients “now” agree on is that patients and their advocates/ most...
Posted in 2020!
This is a cheap way of drawing attention And making noise. Animal welfare groups use this method too. This along with billboards and petitions...
Blog/ commentary A Very British Consultation... Response to the DHSC's ME/CFS Delivery Plan [IMG] LONG COVID ADVOCACY...
He was part of the ME expert group too, or at least attended the workshop in 2009...
ME Association announces three new research grants, Oct 2019 | Science for ME...
OMF in their new may fundraiser info say they plan to do two pilot treatment trials of kynurenine & mestonin. I think that the Later i am not...
I took Nadh many years ago when there was a lot of hype, no benefits, I read elsewhere this week about b3 benefitting something else potentially...
There are no other great options if you have bad or progressive MECFS though are there ? Atleast it is a treatment study and perhaps with the...
The widely used total cost for m.e in the UK is £3.3b although I think that earlier studies suggested double that (I couldn’t understand the...
In the U.K. the dominant name in official establishment nhs circles is more Chronic Fatigue Syndrome alone I feel. Certainly I’ve never met a dr...
Afaic if a person had prior diagnosis of M.E, and given this type severity rarely happens over night, they shouldn't be given this diagnosis...
That’s interesting. It might be a severity thing. When I became fully bedridden I started to loose sensation /awareness of my limbs , so I...
Are you hoping them to commit a figure and if so multi millions ? Given that individually European governments are behind America, Australia,...
Wasn’t there an APPG meeting due this month? You’d think this type of thing could be arranged virtually via zoom etc
https://link.springer.com/article/10.1007/s00296-018-4213-z interesting to see just how far graded activity / exercise is being trialled &/ or...
Thankyou for saying this. The lack of time frames aNd urgency is both apparent and unacceptable. I note that for dementia the G8 leaders have a...
I don’t know if this has been discussed but Simmaron are still doing , imo, good stuff like this treatment trial...
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