Wow that’s amazing reach. Shows how wonderful a write @Naomi10 is.
I watched his CMRC presentation but had brain lapses so more gist than details. he is blessed with energy and seemed very enthusiastic about...
Unfortunately I think that we Are just stuck with double standards. So it’s outrageous for a healthy person to be stuck twelve hours at an air...
I think that deprivarion Is a key word, again under-used in our campaigning. Disability or even fatigue doesn’t usually or automatically convey...
What happens to the donations if it doesn’t take off? Anyone know if he’s going to get support anywhere for this, as a million plus fundraiser...
Perhaps medicine should start insisting that before you label a persons symptoms as psychological they actually have to be able to prove that the...
It’s like homeopathy, they take what is typically a disabling distressing multi symptom disease and dilute it so much it is hardly recognisable...
Nihr havefingers in lots of unpalatable CFS pies. This, funding Crawleys work, behind the work that formed basis of damaging RCGP guidelines, all...
Well ofcourse M.E isn’t like being inside living a busy life. But it’s an aspect, such as not being able to get out into nature, not being able...
From a campaigning point of view I think that its Shown how our community could highlight the impact on loss of freedoms/societal participation in...
Dr Charles Shepherd said a day or two ago I asked when were the severely affected who’ve been waiting decades for assistance going to be on the...
I don’t see how switching CFS/ME to ME/CFS changes anything for the better. U.K. CFS -oxford, Fukuda or NICE criteria isn’t interchangeable with M.E.
Something lay people can comfortably be given to watch, easy to understand, engaging. Very useful.
The guideline development as a considered independent process is a separate issue to a warning about GET going out in the interim based on patient...
Didn’t she say she’d like to work with the charities? A lot of celebs like to “use” their position for good, just few have viewed our cause as...
I don’t know in terms of M.E and conference calling etc how essential this was. I mean it’s pretty devastating given how much on hold everything...
On a cheery note I just asked my Alexa to define PEM and she surprisingly said it “is one of the main symptoms of ME/CFS. PEM can be described as...
Trigger warning ## dont read if wish to avoid anything distressing People with very severe ME in terms of function are the same as the high...
This seems only about fatigue. If it is If they have Post exertion fatigue that isn’t PEM. I would be suspicious people trying to blur boundaries...
So this is another gwas study ? Is it funded ?
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