Love is always the answer, sigh....
You have done well Trish. The simple fact is that questionnaires which look at emotion, anxiety and depression were never designed to be used with...
Maybe the emotional regions are activated by the embarrassment of having your arms wave about randomly in public so everyone turns to look at you....
Sorry, this was typos and missed bits so it sounds scornful of people who feel ME and CFS are the same. We have had that discussion often and this...
This is the reason I do not think that longcovid is the same as ME, though you call it CFS I suppose. It can take up to 2 years to recover from...
The myalgia in ME was because of the, at times, excruciating pain. It feels like acid burning in your blood. In the RF epidemic they noted that...
MS has its share, not so many, obviously, but some are making a good living from it. Because there are so few, MS patients are not as wary as us.
They kept finding interesting things in ME studies but there is never any money to do larger trials.
"The concept that fatigue could be a disease entity in itself and not just a symptom of pathological/clinical conditions gained traction after...
I am very interested in this as I have not heard about it in ME very much. Particularly as a teenager I would have blank episodes which seemed...
I remember times I have forgotten important things because they have been traumatic and we are evolved to remember such incidents. Coming home to...
A researcher into ciguatera poisoning at the University of Hawaii became interested in ME. Most of the work was done before I had internet access...
It is fair to say that the outbreak at Tahoe - and outbreak is the correct term as it spread through the community - is a mystery disease because...
CFIDS came into being because Nancy Klimas had a clinic in San Francisco where she treated AIDS patients. When HIV was discovered to be the cause...
I have said before that sexual abuse is not a specific abuse, it can range from name calling to serious physical attack with suffocation. In fact...
This statement is very strange. From tweets quoting the definitions of disability it is to hard see why it should not be classed as one. I could...
This misses the point, it is a look backwards whereas she is writing as someone involved at the time. In Incline Village at Lake Tahoe there was...
These people forget that we stay ill for decades. In my life I have had times of profound grief and overwhelming joy; I have been stressed at...
This is fair enough BUT any stopping of testing must be along the lines of "We do not know what is causing your illness because of the inadequacy...
Colchicine is a mutagenic. When I used it in a science project it had to be in a fume cabinet so there is no way I am taking it for my ME without...
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