I sometimes think we worry too much about deconditioning being the reason for abnormal results. I did not do much sports while I was still well...
I think it is a much more complicated issue than simply HR going up with PEM. There are different levels of organisation in the body - how...
New patients may not realise that Lloyd (and partner in crime Hickie) were busy doing to Australia what Wessely was doing to UK patients. Their...
OK. I have been trying to find a way to explain the research, reading and discussions over the years but it is too difficult for me just now. So...
There has never been a correlation between severe illness and getting ME. I was no sicker than a usual summer flu, laid up in bed for a few days....
Did Fink not do the original trial of internet based treatments that Crawley copied? It is only original for this new name for the disease!
Exactly, Sean. The resilience required to survive the isolation of the severely affected should be studied by NASA for Mars exploration! As a...
The myth that there is a lot of psychiatric comorbidity comes from Wessely's early belief that ME is a type of depression. He achieved this by...
That sounds like a great idea. It would be a good way to pick up fatigue too.
I go to aromatherapy massage once a month. It is of great help to me because it relieves muscle aches consequent to my ME. I also suspect that...
I believe Margaret Williams was bedridden so managing to do things online may have been possible but publishing was too difficult. Over all the...
I think ME has been treated worse than other diseases is that their stated agenda was to make it disappear. CFS never included the ways in which...
I find this sort of discussion frustrating. Before the CDC invented CFS ME was a recognised entity where the main characteristic, by observation...
Yes, I am sure they will attempt to reuse all the misinformation they used about ME as that was so successful for them. Stating quite confidently...
Sampling many times a day may be the best way of getting a handle on ME.
McEvedy and Beard had done work on mass hysteria among schoolchildren. They looked around for another research project and lit on the Royal Free...
So the use of subjective criteria is now the barrier to treating people with CBT and GET. He conveniently ignores that all the objective outcomes...
If the measure is to be used to check the outcome in a trial I think the questions are not sensitive enough to give a meaningful result. Limited...
ME is not a sop to patients. The disease was originally given the name because of widespread muscle pain and neurological signs in patients which,...
It really is ridiculous and typical of the assertions made about CFS and no one in authority ever queried the evidence for them. I was ill for 17...
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