Investigating fatigue has little relevance to ME and has held research back for almost 40years. It is nebulous and ubiquitous and of no more...
They get many tests to monitor progress so you would expect a large drop after doing a lot the day before to happen occasionally. If it has ever...
I checked the reference for CFS. Couldn't access the whole paper but these are the highlights. It doesn't match what is being claimed here.
I don't think that is strictly true. People with cystic fibrosis and heart disease have extreme fatigue and very bad results on CPET testing but...
Emotional lability is different from us being depressed or anxious. It happens on too small a scale to be picked up in trials or even doctor...
I don't think other diseases get PEM the way we do mainly because I have spoken to people with other illnesses and they do not describe what I...
Some of it sounds like autism, but I get it as a cognitive dysfunction too. At times I just can't think. They kept trying to say it was...
I am not sure what the quote from Ramsay is but when I was first diagnosed he was still medical adviser for the ME Association and the way I do...
I have never had a positive test for EBV.
I am overweight. Until fairly recently I had responsibility for children and I never ate anything because I fancied it just to prevent...
That's interesting. So sorry your 13 year old is sick. I hope there are treatments soon so she can have some childhood. It would be good if...
This makes me wonder. What about their "rule-in" Hoover sign? If the epilepsy is organic it will be negative, if the seizure is psychogenic it...
PEM is already appropriated. BPS studies have claimed their subjects had PEM but what they mean is they get worse with exercise but that is common...
I have the opposite problem. When I have overdone things badly my systolic goes up as my diastolic drops on one occasion it reached 165/52. This...
It may be a completely different system, not up to reading the paper, but accumulation of adenosine during the day is said to be what makes you...
This is the glucose tolerance test and it is the gold standard for diabetes. I used to get one every 2 years when I was prediabetic then one year...
Most people I know with MS believe their symptoms started years before they became sick enough to be diagnosed. Strange occasions when they kept...
I might have mentioned this on the thread before but I found that clonidine made a difference to me. I went from not managing to go out alone to...
It started over forty years ago when I did not understand the energy problems of ME and I became very frustrated because every time I felt a bit...
When I am in a crash yet have to struggle to the toilet or something I begin to feel very dizzy and ill. I have attacks of POTS where my heart...
Separate names with a comma.
