@Jonathan Edwards Are you saying that PEM is not what the CPET measures and PEM is something else, or more than, an abnormal physiological...
I’ve probably addressed this in my follow up post below, but obviously if sometimes her PEM came on up to 3 days later, we wouldn’t think a test...
Not sure about that. But it’s the increase in anaerobic threshold (AT) after exertion that I thought was most significant, when previously it had...
Discussion split from DecodeME - UK ME/CFS DNA study underway Copied post This confirms that my daughter will likely not be eligible for the...
This confirms that my daughter will likely not be eligible for the study then, as her CPET results in October showed that she now doesn’t...
The Workwell Foundation in the US will write you a brief letter summarising the results for $300, but unfortunately won’t provide a detailed...
We did it because we wanted to objectively measure and understand the physiological response to exertion in order to inform our day-to-day...
Sounds fab! What council is that? Maybe I can do that with other councils.
I sent it to the HT at my daughter’s school and she’s holding off circulating it until September. But she said she was impressed with the fact...
Thanks for posting it @Andy.
Yes, I did! I said almost exactly that. And that it would therefore be very welcome if her article was published in there.
I spoke to Catherine today. She’s very much on the biological side and said she’s spoken to many medical professionals and none of them subscribe...
She’s interviewing me on Wednesday and she seems to be doing her research. It sounds promising.
I would pitch for a short series, with each episode focusing on one aspect of ME; eg. daily life, lack of research, wrong treatments leading to...
Yup! I used it this morning on Radio Solent!
[ATTACH] A few pics from Southampton today. We put down 378 pairs of shoes which grew to over 450 throughout the afternoon. Two city councillors...
We submitted this to them as a completed article. They asked me for something last year after coming down on the day. A community journalist also...
I’m pretty sure, having read the magazine, that it’s based around the English school system. That said, it’s worth me looking for a Scottish...
Excellent! There’s another one coming out at the end of June aimed at Secondary school teachers. The message is broadly the same but has more...
Thanks for posting it @Andy. I was hoping they’d put it online and now both the magazine and Teachwire have tweeted it as well. I’m sure this is...
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