It is! The most enlightening thing for us is that both the technician and I felt she seemed better on day 2, both in herself and her performance...
It was at Solent University https://www.solent.ac.uk/enterprises/sports-science It was really easy to sort out, no waiting list, and was £100. You...
Yes, I have. And when I originally contacted them they sent me the 2013 paper "Discriminative Validity of Metabolic and Workload Measurements for...
I read somewhere that it can come on more quickly for children. I thought it was in the paediatric primer, but can't find it. Maybe it's in the...
Thank you. She managed just 6 minutes of cycling on both tests but was shown to be at maximal effort. Being a child (she's 16) her PEM comes on...
They're still referencing the 2010 paper so I guess there are no updates or changes. I can't find any criticisms of it either. My daughter is...
Thread moved and renamed Is there a more up to date paper from these guys or the Workwell Foundation on the management of ME from a PT...
This is where Karen Morris' public resignation from MEAction was published so I think it's her public complaint to AfME. I don't know who ME...
That's my daughter. I've been in regular contact with Steve Brine as my MP and keeping him up to date with how she's doing. He's actually been...
Maybe. But only if they let it. I think it would be more constructive to focus on what has been achieved and the fact that they had helped to...
Noted. Though there's not been a sense of any criticism of that within MEAction. The biggest question we're asking is why people have chosen to...
The biggest barrier to people donating to this fundraiser is the view that they'd rather donate directly to funding research than funding a...
No-one has stopped IiME's voices being included. They have said they wouldn't have contributed to the one we're discussing now even if they had...
IiME have made it clear that they will not collaborate with any charity who works with AfME or the MEA. So even if they had been asked to...
I saw that letter earlier. I applaud their intentions, but I won't be sending it to our paediatrician or any others at the hospital. For all the...
Agreed. Does that mean IiMER aren't part of ForwardME for the same reason (the inclusion of AfME)?
I agree to an extent and I feel disappointed in their very public response to the briefing and criticism. But in the spirit of recognising that...
I also wonder if this comes down to cultural differences and our need for more transparency in the UK, which perhaps hasn't been forefront in the...
Indeed. It's not clear if they were aware of what was happening in the Commons and it's likely that they weren't as a) it's not their focus b)...
Wrt to the briefing document, I'm bemused by the 'controversy' tbh. It was suggested openly on Slack, agreed by all those involved with MEAction...
Separate names with a comma.
