Excellent, thank you yet again Dave, specially like the fact you've written to the UK Health Research Authority too. That this recruitment ad...
Thanks for your interpretations. Do you know of any research on what causes such loss in myelin in the brain/brainstem?
It seems journals will publish anything these days...... Interesting to see the full paper if someone has access? So no GET? Or did the CBT...
Excellent, thanks to Dave and everyone who signed. Dave, is there any point in putting pressure on the MRC and DWP, Scottish government ie...
But we don't know if these metabolic issues would occur in ME patients with reduced exercise. Not saying it may not be relevant but just we're...
I too was wondering the same thing, if they went into this expecting the GMC to do this, but that taking the issue to the GMC was a necessary step...
Thanks for posting, I wonder if all the visual problems that are being found in ME, if replicable, could together be used as diagnostic? And I...
You've done amazing work for PWME over all these years, thanks so much. It must have taken a heck of a lot of time and effort.
Thanks for all the clarifications Suzy, appreciated.
https://dxrevisionwatch.files.wordpress.com/2018/07/statement-on-snomed-ct-and-chronic-fatigue-syndrome-v1.pdf "Since April 2018, SNOMED CT UK...
How secure is this placement, if they review so often can we assume CFS and synonyms are stable in this category for some time?
Absolutely excellent news, thanks so very much indeed Suzy and all others involved!
Ah yes, I remember seeing PW PD dancing, it was quite amazing and it really seemed to help some. Yes what I was meaning was, is it not a bit daft...
Could it be one disease which manifests slightly differently depending on the individuals genetics?
Really good letter, and it's so good to again see so many doctors and researchers speaking out for us. I found this very powerful: "The...
A good friend who has ME was almost killed by the mal prescribing of psyche meds because the attending doctors assumed her severe ME crash was...
That's precisely what I thought, honestly....pot, kettle, black.
Yes I know and you may well be right but ME, CFS, GWS, IBS, POTS, FMS etc they are all much more similar in the eyes of doctors, and with the...
And I've always hoped that if one group can be shown irrefutably to be organic, not behavioural, and the psych research totally exposed then all...
Quote from JE document re CBT/GET/lightning type research: "If you are not able to obtain reliable evidence you cannot obtain unreliable evidence...
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