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  1. Daisymay
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Many thanks Michiel for doing this!
    Post by: Daisymay, Nov 11, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  2. Daisymay
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    So he has, funny that..... And in the last 24 hours, instead he's posted two LP/CFS success stories, I guess he needs to bring in more clients...
    Post by: Daisymay, Nov 11, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  3. Daisymay
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Posted on behalf of Margaret Williams: "It is not surprising that Professors Wessely, White, Sharpe and Chalder commented as they did for the...
    Post by: Daisymay, Nov 10, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  4. Daisymay
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Phil Parker tweeted 6 hours ago: "nice guidelines change removing GET. It always seemed quite a blunt instrument to me..." Then posts a link to...
    Post by: Daisymay, Nov 10, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  5. Daisymay
    Post

    The biology of coronavirus COVID-19 - including research and treatments

    But how do they know if the two groups of people had the same exposure to the virus? Are their assumptions on this valid?
    Post by: Daisymay, Nov 10, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  6. Daisymay
    Post

    NICE ME/CFS draft guideline - publication dates and delays 2020

    THanks for posting Tom and reminding us, it reads just as shockingly now as it did back then.
    Post by: Daisymay, Nov 9, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  7. Daisymay
    Post

    UK: Cheap Energy Club from MoneySavingExpert.com

    We've used the cheap energy club for some years too and I agree it's good. Likewise, no affiliations other than using it.
    Post by: Daisymay, Nov 4, 2020 in forum: Work, Finances and Disability Insurance
  8. Daisymay
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Fall 2020

    Yeah...brilliant everyone!
    Post by: Daisymay, Oct 31, 2020 in forum: Fundraising
  9. Daisymay
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Fall 2020

    Another small donation with thanks x Let's get it to 100% !
    Post by: Daisymay, Oct 29, 2020 in forum: Fundraising
  10. Daisymay
    Post

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    Yes and as there are no RCT's on these revised forms of CBT/GET, NICE surely couldn't recommend them when it's whole thing is to only recommend...
    Post by: Daisymay, Oct 23, 2020 in forum: General ME/CFS news
  11. Daisymay
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Fall 2020

    Donated, with thanks x
    Post by: Daisymay, Oct 21, 2020 in forum: Fundraising
  12. Daisymay
    Post

    Clare Gerada: influence on UK medical practice and ME/CFS management

    https://timesofmalta.com/articles/view/maltese-doctor-made-a-dame-in-queens-honours-list.823675 Maltese doctor made a Dame in Queen's honours...
    Post by: Daisymay, Oct 10, 2020 in forum: UK clinics and doctors
  13. Daisymay
    Post

    Post Covid-19 Syndrome naming

    At least they're not yet calling it post covid wrong illness belief syndrome
    Post by: Daisymay, Sep 19, 2020 in forum: Disease coding
  14. Daisymay
    Thread

    A two part article from Goodelf on MUS

    More interesting stuff from Goodelf, a two part article on MUS https://opposingmega.wordpress.com/2020/08/19/so-what-if-23-get-worse-2/ Part 1:...
    Thread by: Daisymay, Aug 19, 2020, 4 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  15. Daisymay
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Thanks for posting it, may still have an impact even if not posted.
    Post by: Daisymay, Aug 13, 2020 in forum: General ME/CFS news
  16. Daisymay
    Post

    New Video: The PACE trial - Politics

    Another truly excellent video, thanks so much Adam pwme
    Post by: Daisymay, Aug 8, 2020 in forum: Advocacy Projects and Campaigns
  17. Daisymay
    Post

    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    Yes, and it's interesting that we've not had any mass hysteria among the worlds female nurses and doctors during the covid pandemic, on the...
    Post by: Daisymay, Jul 28, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  18. Daisymay
    Post

    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    Thanks very much for all your work on this, it is so important to keep all this history of ME.
    Post by: Daisymay, Jul 28, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  19. Daisymay
    Post

    e-coli infection and leaky gut

    Graham, I hope things improve for you now you've got your GP monitoring things x
    Post by: Daisymay, Jul 27, 2020 in forum: Gastrointestinal and Urinary
  20. Daisymay
    Post

    Government and Insurance companies - establishing the BPS model

    "6. Treatment is difficult, extraordinary sensitivity is necessary." This from Wessely, you must be joking.........the way he and his colleagues...
    Post by: Daisymay, Jul 25, 2020 in forum: Work, Finances and Disability Insurance
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