The game isn't perfect, but in terms of getting the basic principle across (of only having the capacity to do a limited set of activities, and how...
Thank you, I'm glad that you didn't mean that response in that way. I assure you, my primary limiting factor is PEM, and I meet the IOM diagnostic...
I didn't say that my activity is primarily limited by my primary feelings of fatigue, but that doesn't meen that I don't experience feelings of...
That seems like a quite a good critique of the CDQ. I feel like any questionnaire that focuses on the subjective feelings of fatigue is going to...
Yes, that might well be true. The concern is just that his response may frame the debate more towards "are patient groups negative?" and "can...
It is absolutely disgusting, I absolutely agree. I'm very sure, though, that's what he's trying to do - he's trying to distract from the true...
I think when people make tweets like this, it's best not to give them too much attention. He's just trying to distract from the fact that they...
Well, the points that everyone have made are reasonable. I still think that many patients greatly overestimate their scientific ability, and it's...
That came from activism and influencing researchers to do the right thing, not our scientific skills. And that's irrelevant now, because we've got...
We have good scientists representing us that can lead the way. If possible, it's far more effective for them to lead the way, rather than trying...
The greatest concern is whether they allow other researchers like Carolyn Wilshire, Jonathan Edwards, Ron Davis, Jose Montoya, Ian Lipkin, etc. to...
I personally think that's pretty fair. Almost every scientist would tell you that people without the necessary training and experience usually...
That's also my experience with CBT at CFS clinics. It was just about management, support, and any other issues I wanted to talk about. The...
I was more referring to solving the problem by earmarking more funding in general, which, if it was a significant amount, would attract a lot more...
Even if it's actually within their control to influence the outcome of grant applications by the way that they select grant reviewers, the best...
The way that we won in Norway I guess. In Norway I think it was the Prime Minister that lead the change. But this is just like any other...
I might be wrong about this - but I don't think it's fully within their control whether the grants are awarded. I think the legislation dictates...
No, that's actually how funding agencies work. They don't generally earmark funds, they just get grant applications, then those applications are...
I don't know how much it's actually within the control of the NIH to earmark funds or change the grant awarding process without political support....
I think when he says "It's hard to see how [that criticism is fair] when you hear stories", despite the wording, he really means the criticism of...
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