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  1. Skycloud
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Thank you @Jonathan Edwards. More or less what I've just been trying to write, which I've now scrapped. but I didn't know about the chairman, but...
    Post by: Skycloud, Jan 22, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  2. Skycloud
    Post

    David Tuller: Trial By Error: My Six-Month Review

    Thank you David. I can see that you are going to have to prioritise what you do between now and June and that may not be easy! There's a book in...
    Post by: Skycloud, Jan 22, 2019 in forum: General ME/CFS news
  3. Skycloud
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    I think sometimes we're inclined to see conspiracy against us when that's not (all?) that's going on. There are other likely reasons why...
    Post by: Skycloud, Jan 22, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  4. Skycloud
    Post

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    I also support your letter @Trish, thank you for sending it
    Post by: Skycloud, Jan 13, 2019 in forum: Open Letters and Replies
  5. Skycloud
    Post

    Forward-ME Group Minutes – 21st November 2018

    Thanks @Andy. I remember Sam Bromiley now.
    Post by: Skycloud, Jan 10, 2019 in forum: Advocacy Projects and Campaigns
  6. Skycloud
    Post

    Forward-ME Group Minutes – 21st November 2018

    Anyone know who Suzie Henson-Amphlett and Sam Bromiley are?
    Post by: Skycloud, Jan 10, 2019 in forum: Advocacy Projects and Campaigns
  7. Skycloud
    Post

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    I'm probably wishing for the moon but I still think that a different group made up of independant clinicians/scientists and patients should and...
    Post by: Skycloud, Jan 10, 2019 in forum: 2021 Cochrane Exercise Therapy Review
  8. Skycloud
    Post

    OMF Poetry and Art Slam contest 'Hope and Heart for ME/CFS' January 2019

    That's good @Trish - send it in!
    Post by: Skycloud, Jan 9, 2019 in forum: Advocacy Projects and Campaigns
  9. Skycloud
    Post

    ME Association Website Survey: What are the most important things a GP needs to know about M.E.? | 08 January 2019

    The three things I voted for are the three most popular choices so far, though the number of votes cast is low at this stage. I hope that...
    Post by: Skycloud, Jan 8, 2019 in forum: General ME/CFS news
  10. Skycloud
    Post

    Feeling stressed? Join a choir, says top psychiatrist. (Dec 31 2018) Davis, Classic fM

    Perhaps Wessely is trying to make a reasonable point that for stressed out students taking part in enjoyable and sociable activity could be a good...
    Post by: Skycloud, Jan 3, 2019 in forum: Other psychosomatic news and research
  11. Skycloud
    Post

    BMJ - Pledges for the new year (open science and involvement of patients)

    But they don't want to know if 'patients and other relevant communities' notice problems with what they publish. edit to fix predictive text
    Post by: Skycloud, Jan 3, 2019 in forum: Research methodology news and research
  12. Skycloud
    Post

    Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018)

    I've been wondering for some time - presuming reduced deformability of RBCs and this way of measuring them pans out as a biomarker, and it's...
    Post by: Skycloud, Jan 2, 2019 in forum: ME/CFS research
  13. Skycloud
    Post

    ‘It’s the unknown’ – understanding anxiety: from the perspective of people with multiple sclerosis (2018) Chalder et al

    I can vouch for 2 kinds of anxiety from personal experience. The kind that 'just happened' and took over my body was very strange to experience...
    Post by: Skycloud, Jan 1, 2019 in forum: Other health news and research
  14. Skycloud
    Post

    Ecclesiastical Insurance: 12 Days of giving

    Also Tymes Trust, charity no. 1080985
    Post by: Skycloud, Dec 11, 2018 in forum: Fundraising
  15. Skycloud
    Post

    Action for M.E.'s AGM and Conference 2018

    @Sly Saint Ok I see. I couldn't remember that bit well enough and didn't want to watch it again to check.
    Post by: Skycloud, Dec 11, 2018 in forum: General ME/CFS news
  16. Skycloud
    Post

    Using Heart rate monitoring to help with pacing.

    I'll have a look, thanks @adambeyoncelowe
    Post by: Skycloud, Dec 10, 2018 in forum: Monitoring and pacing
  17. Skycloud
    Post

    Action for M.E.'s AGM and Conference 2018

    Did she say Medically Unexplained Symptoms, or did she say medically unexplained symptoms? Maybe the problem is that some biopsychosocialists...
    Post by: Skycloud, Dec 10, 2018 in forum: General ME/CFS news
  18. Skycloud
    Post

    Using Heart rate monitoring to help with pacing.

    3 fitbits in 3 years sounds annoying too and I hope the third lasts well for you, Trish. I also hope that as with many things the technology...
    Post by: Skycloud, Dec 10, 2018 in forum: Monitoring and pacing
  19. Skycloud
    Post

    Using Heart rate monitoring to help with pacing.

    After a little over a year of use (so out of warranty) the silicon strap has broken on my garmin vivosmart 3. So far I've been unable to find a...
    Post by: Skycloud, Dec 10, 2018 in forum: Monitoring and pacing
  20. Skycloud
    Post

    Cochrane Exercise Review Withdrawn - Individual Patient Data

    Sounds very unhygienic.
    Post by: Skycloud, Dec 10, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
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