Ground covered at The ME/CFS Stanford working group (taken from the summary text by Ron Davis and Janet Defoe) of :
I can’t make him out to be honest, and I hope he doesn’t really expect Twitter chit chat to be a good way to find out the views of patients on...
Thank you, that’s helpful. I agree completely about the lobbying.
I think I was feeling very discouraged yesterday by the consultation comments and the RC’s statements. They do present a daunting edifice and the...
I very much hope so too, Trish. The dam has to break somewhere at some point. People with ME, especially the children, need so much better. None...
Yes, You’re right about all those things @Trish, I wasn’t forgetting at all, though I will admit that I did momentarily forget about the Lightning...
I think it’s understandable that Dr Hammond has responded the way he has, on Twitter, to accounts of harm that come up on Twitter. In the same way...
I didn’t use the word “low”, though yes, that’s a part of it, perhaps for some more than others. I meant their opinion of patients is what fits...
Perhaps it’s simply that those behind RC endorsement of LP hold an opinion of PwME (sorry, CFS/ME) such that a pseudoscience behavioural...
It’s good that you’re doing this. I noticed you make this point in your draft and in the comments of David Tuller’s latest blog: (my bold) It’s...
Thanks for that, Kitty.
Reposting (I put it in the wrong thread before) with a few minor changes. Perhaps all this will at some future point be seen as a necessary and...
Deleted post - wrong thread sorry!!
Well that’s interesting. One of the symptoms I had whilst covid infected was earache. It was a stabbing pain occurred just over a couple of days...
Website : https://www.richmondandkingstonmegroup.org.uk/ Also from their home page:
Just posting the link onto this page: https://crowdfund.berkeley.edu/project/27513 $57,909 90%
I very much agree with JE. I think it would fairly quickly be apparent which of them are really interested in developing well evidenced practice....
Edit - removed unnecessary section (brain fail) In the clip above of Dr Khan on BBC news he says that “a simple bedside test called a venous...
Thanks @strategist and @Arvo. You’ve confirmed the book title and how to spell Hurry’s name so I’ve edited the transcript text accordingly.
In some respects I’m looking forward to the full publication of this. I’m curious to see if they say anything new, which I doubt, and I’ll also...
Separate names with a comma.
