Transcript. [SPOILER] If anyone spots mistakes, please let me know and I’ll alter it. In a few places I was unsure of what I could hear and for...
It looks interesting, being based around the documentation of one person’s ME experience, but I don’t have the cognitive energy to read it. From...
It sounds as though you don’t experience a similar problem with your legs in response to other activity/or with PEM? Could you have been tensing...
Me too, and I use a fitted sheet on the mattress underneath. I found it much easier.
Deleted previous post as a bad job. Basically I mean to say and I hope it makes sense - The MEA reference to social media posts and asking for...
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Watching bit by bit I’ve reached the end of KM’s talk (it finishes at about 1 hour 10 minutes). I haven’t watched the Q&A. I need to watch again...
I think @Esther12’s points are worth thinking about, but don’t have the capacity to say where I might differ. I’ve been thinking about this...
Thanks Midnattsol, I think I remember that now you mention it. Just as Sharpe isn’t really interested in engaging with anyone either when he...
I was genuinely wondering about it, though the question is perhaps pointless because people here probably don’t know the answer to it. I guess I...
Ah ok - my brains a bit fried now so I’m probably not so good at making sense of things.
@Invisible Woman I don’t think anything I’ve said in my two posts is a contradiction of what you have posted seemingly in reply to me - unless I’m...
This is a twisting of the idea of pacing. I don’t know if that’s the message any ‘leading figures’ gave or not, but these things are the...
If it is true that Garner received death threats, or something that he has in sincerity construed as a death threat, then that must be horrible...
The group that is missing from this stakeholder list is the patients themselves.
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This is a better article than I expected, and pretty useful information for those who don’t know much at all about Long Covid or ME/CFS, or have...
It’s no more bulky than the Garmin smart watch I wear 24/7. I had been envisaging a bulky ankle monitoring device.
I think I remember comment on the forum that one day you should write a book, and I think I remember you responding that you wouldn’t. That’s a...
A strategy would be helpfully posting links to the expert testimony from JE, stating his credentials, and links to the evidence review and...
Separate names with a comma.
