I found this bit interesting because it's hard to predict, from how my body feels, how long I will be able to sustain an activity. I often feel...
"ME/CFS" is the new name for CFS and for ME. CFS was the new name for ME.
As is the case in hundreds of other diseases? :rolleyes: These other diseases mostly don't have a psychosomatics lobby group that is constantly...
I think what the authors and many others are doing is confusing cause and effect. When we are sick, the body adopts a survival program that is...
Looks very interesting. I would love to have a device that can track blood flow to the head. It would probably help me get treatment.
Maybe the NIH is taking so long because they think that due to the controversy surrounding ME/CFS they need really solid evidence before making...
Truly effective treatments do not need this kind of marketing because it's easy to demonstrate in credible experiments that they work. (this kind...
Me too. Aren't these often the best and most authentic? It's tricky to talk about these things because there no clear definitions for the various...
I also do not experience my own cognition like that at all. I think there are indistinct cognitive processes that have little to not verbal or...
I also wonder how brain fog affects the impression that others have of us. If you have not enough energy to think and communicate properly, you're...
The ideology of CBT seems to be partially responsible for the testimonial injustice suffered by people with ME. The descriptions of our illness...
A good mindset for good energy management is to do things for fun and personal satisfaction. That avoids falling into the trap of becoming...
Working together seems like a good way to achieve more political power, which we desperately need. But having one name for all of these...
This paper is interesting because no one has tested pacing so soon after infection. We know it doesn't do much later on but it might work much...
The study does seem to show that pacing improves outcomes, but can't tell us by how much due to various methodological weaknesses. There also...
@Andy I don't think so. Pacing allows doing more if capacity improves.
"catalytic antibiotics" is a typo. It was antibodies. Very good. If I remember right he also said during the conference that they found variants...
Yes this is exactly what I was thinking. The two Lifelines questions that are meant to capture PEM seem inadequate for the purpose of determining...
The reason ICC, CCC and IOM criteria were specified is almost certainly to ensure that Fukuda criteria would not be used.
Wasn't there talk about aquaporins during the latest Invest in ME conference? They function to allow water to move in and out of cells.
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