Maybe this will finally get me to stop eating bread entirely, after spelling it out that I'm reliably a little bit worse on Mondays and that the...
I have a regular habit of buying and eating bread on Monday because I like it. I definitely, 100% tend to be more symptomatic on Monday after...
Also I notice that as my illness improves, I also become more able to try new things. Like self-help courses or sports. So it's possible that...
The patient had covid infection in October and miraculously recovered in December thanks to LP, and clearly not due to the passing of time. PS:...
My POTS coincided with small fiber neuropathy and the treatment for POTS (salt water, and avoiding excessive exposure to triggers) were helpful....
What may have happened is the human tendency to want to fit diseases into neat boxes. POTS was a neat box where various kinds of orthostatic...
Recovery stories on youtube especially in the context of someone like Raelan Agle are often advertising for commercial programs and the stories...
Claiming to be able to do do 30 mph in a bike for 20 minutes with a peak heart rate of 150 is complete BS. Apparently the lightning process...
Hi, a small update. I've made significant progress in improving my social skills and confidence. There haven't been any significant negative...
This will be an opportunity to point out the problems with the interpretation of effort preference in ME/CFS.
No, it's the lack of acceptance by society that blocks biographical repair. They could say that it's a terrible disease without treatments and...
My two cents. Young people with ME/CFS need to be allowed to have an identity that includes having a chronic illness. It's a part of who they...
I'm skeptical because I spend a lot of time sitting, which if I remember right, would not be counted as being upright by these researchers. I have...
Or perhaps the described changes are simply a product of being ill (with an unexplained "organic" illness).
A new type of Ehlers-Danlos syndrome with vascular features has been discovered. https://www.nature.com/articles/s41431-024-01559-1
I can't comment on the neuroscience but I get the feeling that they got it backwards. Ever since illness onset I've struggled to manage the...
Unraveling Havana Syndrome: New evidence links the GRU's assassination Unit 29155 to mysterious attacks on Americans, at home and abroad...
I can physically do stuff that I didn't dream about a year or two ago. Yet I'm somehow still quite impaired in ways that I can't fully comprehend....
I have an avversion to beginning tasks where the amount of work and effort required for completion is unknown. This is probably because a person...
This also sounds very relevant. I think I might have both a problem with being slow in analysing complex issues and forgetting the progress made...
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