I improved significantly in the last year and I have much less PEM, and when I do it's milder and different. I'm also physically fitter than...
My impression is that self-help books for ME/CFS are about treatment, which is mostly going to be bad advice. Are there any good ones that focus...
To give you an idea of how powerful and capable an electric mountain bike is: There's an alley that I sometimes go through, with a section with...
A good ebike is around €2000. The cheapest I would consider buying for my personal use would be a hardtail mountain bike from an established brand...
E-bikes are expensive and people are rightfully reluctant to buy them when there are uncertainties. From what I understood, a quality e-bike will...
I don't like driving in traffic either.
If you're too healthy for a wheelchair, but too sick to walk for more than 30-60 minutes without feeling uncomfortable, consider a good e-bike (a...
It's easier to claim to be a victim of the close-minded that want to suppress your innovative ideas, than to admit your ideas are the same old...
I have a copy of the full article if anyone wants.
I don't like is the focus on deconditioning. I often feel like I'm under the influence of a mildly toxic sedative. This has nothing to do with...
My guess is that the lack of coherence is due to different authors having different opinions.
That sounds like Nath doesn't like the psychobabble either.
I recall writing on this forum multiple times about how my body, when not in PEM, appears to be unable to fully sense whatever problem it is that...
If PEM was called next-day malaise it would help. In these situations you never know if the other person is confusing PEM with feeling tired after...
Nausea discourages people from eating things. Pain discourages people from doing things. Fatigue also discourages people from doing things, in a...
How I actually experience effort, fatigue and PEM: There is an initial mental barrier to initiating activities that might lead to increased...
Yes, I have obvious problems with initial orthosttic hypotension. You don't need sophisticated tests to see it. It's easy to replicate if you...
It seems like this isn't receiving much attention from patients. Maybe because o the registration process. Most of the ideas posted so far seem to...
I suspect I have postexertional sympathetic overactivation. I think it's just a consequence of exertion being somehow physically more stressful...
They feel different to me.
Separate names with a comma.
