This website seems to be down https://www.dialogues-mecfs.co.uk/
I love it, I'll be quoting this all over the shop
I'd like to know what questions came up in the Q&A
How vile, and exhausting.
Actually doctor it’s one issue one appointment so I’ll telephone another day to arrange that!
now everybody has to do a shot. I agree, it’s one thing hearing that there is nothing they can do to treat the MECFS, but another level of...
Perhaps the NHSE ‘nudge’ unit (whatever it’s called) should focus on nudging their staff more than the public. Or maybe they do and we just don’t...
And it will actually last, and spread
In 1979, when endocrinologist David Rabin was diagnosed with an incurable neurodegenerative condition, he understood only too well the pain ahead....
Yes, and asked well worded questions that can’t be vaguely fobbed off, including at open meetings, and well worded FOIs.
No forum-approved words for this one
I expect via NHSE putting together a very basic set of questions on a spreadsheet with a Red Amber Green rating and sending it to Integrated Care...
A very British term!
Care for people with severe ME is “nonexistent,” says coroner in call to action | The BMJ doi: https://doi.org/10.1136/bmj.q2202 (Published 08...
This and this
Let me guess. Budget cuts, cuts to coproduction budgets, redundancies, everyone off sick or musical chairs for the rest of the staff so no...
Is there no formal requirement for transparency in this...endeavour?
You might find some information from this thread helpful - https://www.s4me.info/threads/dumping-syndrome.39486/#post-545623
I honestly don't know, but as you say - as a mild/moderate with OI I'll have to think about how I make sure my orthostatic intolerance-related...
Separate names with a comma.
