I wonder how Carla is doing now - does anybody know?
I too get full quickly when eating lots of vegetables as part of a low carb diet, and need to eat more often as a result and to get the calories....
Is there a short succinct resource that tells GPs how they can effectively support patients who have an established MECFS diagnosis - not...
I voted no. A few years ago I had a good summer and managed to go for slow walks of up an hour, with rests, and managed to go a little longer...
I like seeing that face appear too, once I had a salad with some raw red onion,.let my cat get a good sniff thinking "hehe you'll hate this" and...
I took a diazepam a few hours ago and just realised I am sitting on my sofa with my feet on the floor, which I never do, it is noticeable because...
Whilst I haven’t ever used the word poisoned to describe PEM, before MECFS I had some experiences that are as the closest thing to my worst PEM -...
What is also quite telling is that not one person has made a joke about us all conducting an experiment in the name of science
It seems as though people do just verbally report that, so it is something that people experience and know about without needing any fancy...
Automated instrument designed to determine visual photosensitivity thresholds edit: changed link
That’s fascinating. Apparently people just report that they have one sided light sensitivity (according to this paper: Unilateral Photophobia or...
I think this sensation is related to migraines and/or special headaches and not MECFS, I haven’t heard anybody else with MECFS mention it....
I have had DOMS without PEM. From low level activity where I was doing something at an odd angle.
I am interested too, I don’t think I have ever used the word poisoned but I knew from the beginning that people with MECFS use the term. a few...
I forgot to say that I sometimes get a stuffy/runny nose and aches or pain in my cheek/lower forehead, on the left. On the occasions where I...
Long Covid with PEM but not MECFS?
I haven’t answered yet because I haven’t felt light or sound sensitive since the question was asked. I am now feeling light sensitive and have...
Sometimes I can enjoy a couple of glasses of red wine or a slimline G&T without repercussions, most of the time I cannot because I get headaches...
I think anything about different sensitivity on different sides is relevant!
Sleep disturbances in MECFS by the Bateman Horne Centre I like some of the Bateman Horne stuff, but slightly questioning the latest outputs on...
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