Just a few links, nothing on the above changes. Long Covid Clinic Update January 2024 Long Covid Service South Coast Fatigue is commissioned by...
In fact, let’s let people without MECFS play alongside us too! ETA: they start at 40 and only have to go half way down the snakes
I do agree, and I think providing an opposition can just add fuel to the fire, but it’s easier to spread a catchy one liner than it is to get all...
In the UK if you say ‘memory issues’ to a sceptical doctor they can tend to dismiss you because they think “well you remember that you forgot...
Perhaps we need a catchy slogan that makes it clear that ‘we’ are not attacking the persons experience and choices, nor the utility of generic...
Feeling separated from the world happens sometimes when people disassociate. NHS says: I have read about this because I think occasionally I...
I mean 'pathways' for a given geographical area where MECFS, Pain Management, Fibro, Long Covid and 'fatigue' services, some or all of which have...
Do we have a thread where the implications of combined MECFS, pain, fibro, Long Covid and fatigue are discussed? Is it worth discussing? It's...
If you accidentally hit a multiplier of 10 you are referred to a mindfulness app, go back two spaces.
I enjoyed Qigong but it involves a lot of arm movement and my arms become too heavy to lift quite quickly when I use them at or above shoulder...
Quite.
Only when in a crash, but not during every crash. Worse in the morning. I don’t think it correlates with having spent more time lying down in the...
Brain fog for me is feeling painfully muddled, struggling to hold information in my head, struggling to work through a simple problem, my mind...
I don’t think people will take us any more or less seriously if we have a more relatable word. I am however interested in what people feel when...
No, but if you insult your rice it will give you botulism!
Are you sure you’re not a vampire?
It’s a great time to have a story to tell if it’s about ME/CFS or Long Covid
The catch 22 continues.
Thing is they can’t exactly stop him now because he’ll say “see - silenced!”
On the event page "Paul developed the post-COVID-19 condition, and recovered using neuroplastic strategies"
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