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  1. PhysiosforME
    Post

    Pacing - what do you do/how would you describe it?

    It's taken a while but we are hoping to put together our pacing podcast very soon. If you have any more comments about pacing please keep them...
    Post by: PhysiosforME, Oct 30, 2020 in forum: Monitoring and pacing
  2. PhysiosforME
    Post

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    You beat me to it - thank you for sharing here's the direct link to our blog page...
    Post by: PhysiosforME, Oct 28, 2020 in forum: General ME/CFS news
  3. PhysiosforME
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I love this!
    Post by: PhysiosforME, Oct 19, 2020 in forum: Long Covid news
  4. PhysiosforME
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    :) thank you - we tried to get the message out there! A few others were name checking us as well so fingers crossed making some progress
    Post by: PhysiosforME, Oct 19, 2020 in forum: Long Covid news
  5. PhysiosforME
    Post

    UK: Physios for ME

    As Autumn is back to school/education time, we are publishing a series of blogs on this subject...
    Post by: PhysiosforME, Oct 4, 2020 in forum: News from organisations
  6. PhysiosforME
    Post

    BPS attempts at psychologizing Long Covid

    Actually - just had an update - we offered them a call and they have yet to come back to us!
    Post by: PhysiosforME, Sep 13, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  7. PhysiosforME
    Post

    BPS attempts at psychologizing Long Covid

    We have a call arranged with them next week!
    Post by: PhysiosforME, Sep 13, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  8. PhysiosforME
    Post

    A general thread on the PACE trial!

    [MEDIA] first contact has been made!
    Post by: PhysiosforME, Sep 13, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. PhysiosforME
    Post

    A general thread on the PACE trial!

    thanks for tagging us in this - I hadn't seen it and definitely agree he seems to be someone to link up with
    Post by: PhysiosforME, Sep 13, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. PhysiosforME
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    We did manage to get the CSP to add a section on PVFS https://www.csp.org.uk/public-patient/covid-19-road-recovery to this page (and to remove the...
    Post by: PhysiosforME, Sep 13, 2020 in forum: Long Covid news
  11. PhysiosforME
    Post

    pain and brain

    Sorry to hear how much your daughter is struggling. We would always say that any change in symptoms should be checked out - most GPs are doing...
    Post by: PhysiosforME, Sep 13, 2020 in forum: Pain and Inflammation
  12. PhysiosforME
    Post

    Pressure Point Threshold and ME/CFS comorbidity as Indicators of Physiotherapy Response in Fibromyalgia. Falaguera-Vera et al. 2020

    My thoughts entirely about the abstract - it isn't inspiring me to read it!
    Post by: PhysiosforME, Sep 13, 2020 in forum: ME/CFS research
  13. PhysiosforME
    Post

    UK: Physios for ME

    We've got a new tube channel https://www.youtube.com/channel/UCLw_WOa25bySRh5F9ASaSXA and have just posted the first part of a two part podcast on...
    Post by: PhysiosforME, Sep 6, 2020 in forum: News from organisations
  14. PhysiosforME
    Post

    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    Thanks for tagging us. Grrrh is all I can say! Will add it to the agenda for our meeting next week to work out how to respond as although it's...
    Post by: PhysiosforME, Sep 6, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  15. PhysiosforME
    Post

    UK: Physios for ME

    Thanks for sharing - I have been on holiday so only just back on line!
    Post by: PhysiosforME, Sep 1, 2020 in forum: News from organisations
  16. PhysiosforME
    Post

    United Kingdom: Scotland NHS Lothian ME/CFS clinic

    I will check with the others - it's been a hectic couple of weeks at work and I am not totally up on where we are with everything!
    Post by: PhysiosforME, Aug 22, 2020 in forum: UK clinics and doctors
  17. PhysiosforME
    Post

    Psychologically Informed Physical Therapy for Children and Adolescents With [FND]: The Wellness Approach, 2020, Gray et al

    Thank you for tagging - As a mum to two boys with ME I cannot like your comment in anyway! Will have a read even though it may incense me!
    Post by: PhysiosforME, Jul 31, 2020 in forum: Other psychosomatic news and research
  18. PhysiosforME
    Post

    UK - NHS England online tool and clinics for long Covid.

    We're trying hard to get some information included about PVFS/ME - will keep you posted. We did manage to get a mention of PVFS on the CSP...
    Post by: PhysiosforME, Jul 31, 2020 in forum: Long Covid news
  19. PhysiosforME
    Post

    (Spanish) Effectiveness of graduated therapeutic exercise and CBT in CFS a systematic review, 2020, Polo Ferrandez

    Ah yes I think this may have come our way already! Will share with the others - we have a semi standard response now!
    Post by: PhysiosforME, Jul 27, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. PhysiosforME
    Post

    e-coli infection and leaky gut

    @Graham please let me know if you still would like me to put you in touch with the A&E passport work Michelle
    Post by: PhysiosforME, Jul 27, 2020 in forum: Gastrointestinal and Urinary
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