Still no official diagnosis, but I've still only seen the one rheumatologist about it the one time in October. Her attitude was to wait and let...
I finally got around to creating an imgur account so I can post some photos of my own outward Relapsing Polychondritis symptoms. I'm doing so in...
It seems we might not really know the answer to that question in regards to MS. Here is an excerpt from a 2014 post by a PhD with MS discussing...
Biotin Supplements Can Interfere With Cardiac Troponin Tests: One person died after excessive levels of biotin, also known as vitamin B7,...
There seem to be a lot of people in the Relapsing Polychondritis forum that also have POTS, OI, or OI/POTS-like symptoms. This makes me wonder if...
@Justy There are a few different possibilities that could explain why the 2 labs are getting different ANA results. " The antinuclear antibody...
Yes it is not something that happens to all patients with RP. It's estimated that around 50% of RP patients have laryngotracheal involvement and...
Yes I knew ahead of time about the possibility of the steroids causing me insomnia and I was thrilled when I ended up having no problems sleeping...
PART 3 I became aware that there is a known rheumatologist who specializes in relapsing polychondritis and RP research (Dr. B) here in my state...
@Woolie Yes unfortunately the treatment for relapsing polychondritis comes with it's own set of difficulties, and possible problems, but it's a...
Yes and while I have been accepting of my ME/CFS diagnosis as it was the best fit (until recently of course) I kept myself open to the possibility...
[IMG] What is Relapsing Polychondritis (RP)? Relapsing polychondritis (RP) is a rare multisystemic autoimmune disease characterized by...
PART 2 On September 25th I woke up to find my right eye was red, irritated, and painful. These symptoms lasted almost 2 weeks. Then on October...
PART 1 Here is a run down of what's been going on with me.... In January of this year I traveled to see Dr. Chheda at Open Medicine Clinic. She...
This is an article that I often see suggested in online support groups that is about Small Fiber Neuropathy. It's a good resource....
My husband was prescribed a round of antibiotics for a puncture wound last month and it caused him to suddenly develop horrible halitosis (wicked...
With regard to the Rituximab studies, the researchers knew they were using the real deal because they tracked B-cell depletion, etc of patients.
In regards to DSPD/DSPS... DSPS is diagnosed based solely on a description of the symptoms and sleep logs. Sometimes a non-invasive...
In regards to Non-24... Polysomnography is not required for the diagnosis of non-24 per se, as it is the timing rather than the quality of sleep...
What is Delayed Sleep Phase Disorder? Delayed Sleep Phase Disorder (DSPD), also known as Delayed Sleep Phase Syndrome (DSPS). Does it have...
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