Today marks 2 months since I began being treated for RP. I am now being treated with.... - 10mg Prednisone daily -1,000mg of Calcium citrate...
This article just popped up my browser as a recommended read :( Is chronic pain something more people should accept?...
https://themighty.com/2017/11/pain-acceptance-patient-response-vox/?utm_source=Facebook&utm_medium=VideoComment "The podcast prompted a backlash...
I am one month into my RP treatment.... -10mg of Predisone daily (though I did have to increase to 15mg daily for 6 days due to a sudden...
Multiple torrents of the film are available online. It took me a second to find it just now. Unfortunately it's just about impossible to stop...
https://www.npr.org/sections/health-shots/2018/03/27/597159133/how-bad-medicine-dismisses-and-misdiagnoses-womens-symptoms?utm_campaign=storyshare&...
Sounds like me. For the past 4 years there has been numerous times when I find it necessary to sit on the floor inside a store, on the sidewalk,...
Great to hear about your experience at the NIH. In my case doctors have in the past few months realized that my ME/CFS was a mis-diagnosis and...
This is a news article about a great stem cell focused blog I learned about. I highly recommend the blog as a great resource. "Back in his lab...
https://mobile.nytimes.com/2018/03/15/health/genetic-mutations-diagnosis.html?referer=https://getpocket.com/recommendations "With a database of...
Looks like liver is a great source of K2. I've been wanting to start consuming beef liver from local pastured cows but have been putting it off....
No those blood tests were done by an immunologist after it was discovered I had a complement deficiency. The doctor was unaware I was experiencing...
https://ipscell.com/2017/12/hope-hype-on-unpublished-huntingtons-disease-trial-splashy-news/ "The splashy news a couple days ago that there may...
Hi Lucy. Now that I am taking both Prednisone (10mg) and Plaquenil (200mg) daily I thought I would say hi and ask you how you've tolerated them....
@Woolie (you wrote the following to me previously) "I'd be interested in hearing more about the relationbetween your ear/cartilage flares and...
Yes I really do hope I can taper off Prednisone completely someday, but unfortunately many RP patients are forced to remain on Prednisone for...
@Jonathan Edwards I see that a new paper published in January about RP titled: "Refractory Relapsing Polychondritis: Challenges and Solutions" has...
I was thinking today that perhaps what Dr. B meant was that I may be a good candidate for IVIg because my genetic complement deficiency may mean...
Thank you @Jonathan Edwards for explaining that to me. I am aware of at least a few RP patients who have tried Rituximab. It's something I will...
Thank you so much for taking the time to look up Beneroya's website and letting me know about Gerald Nepom. As for detectable autoantibodies...
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