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  1. Forestvon
    Post

    RSM The NHS at 70 Podcast: Episode 8: Prof Sir Simon Wessely - The Challenges for Mental Health

    Listened to first part, and he talks of the stigma of being a psychiatrist when he was first qualified and how neurologists were saying to him...
    Post by: Forestvon, Sep 2, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  2. Forestvon
    Post

    Watt from MRC defends PACE in letter to Times

    Has anyone a link to the Times eletters to send to MPs? Good to keep them up to speed before the new session.
    Post by: Forestvon, Aug 30, 2018 in forum: General ME/CFS news
  3. Forestvon
    Post

    Member comments wanted: First section (Why the guideline is needed) of the NICE ME/CFS guidelines draft scope

    I am severely affected in that can't sit up in wheelchair so mainly in bed except trips to loo, but I certainly get PEM. My ME fluctuates to point...
    Post by: Forestvon, Jun 30, 2018 in forum: General ME/CFS news
  4. Forestvon
    Post

    Member comments wanted: First section (Why the guideline is needed) of the NICE ME/CFS guidelines draft scope

    Should ME with PEM and cfs ie without pem be separated into two?
    Post by: Forestvon, Jun 30, 2018 in forum: General ME/CFS news
  5. Forestvon
    Post

    Follow-up actions from 21 June Westminster debate - thank the MPs, donate to UK #MEAction

    Trouble is they dont see the severely affected who can't visit so showing them a (short) video of someone severely affected if you are able to...
    Post by: Forestvon, Jun 25, 2018 in forum: Advocacy Action Alerts
  6. Forestvon
    Post

    Follow-up actions from 21 June Westminster debate - thank the MPs, donate to UK #MEAction

    Anyone know names of MPs who attended but didnt speak?
    Post by: Forestvon, Jun 24, 2018 in forum: Advocacy Action Alerts
  7. Forestvon
    Post

    Follow-up actions from 21 June Westminster debate - thank the MPs, donate to UK #MEAction

    Think these are just the ones who actually spoke.
    Post by: Forestvon, Jun 24, 2018 in forum: Advocacy Action Alerts
  8. Forestvon
    Post

    #MillionsMissing 2018 UK

    Long interview w two ME sufferers starts about 25 mins in [MEDIA] Gloucester event Eastgate St, Sat 12 May, 12-3pm
    Post by: Forestvon, May 7, 2018 in forum: Advocacy Projects and Campaigns
  9. Forestvon
    Post

    May 12th/ME Awareness Month - suggest how S4ME might get involved.

    you can download and print ME awareness leaflet for general public (larger print, bold and boxes) and the excellent comic strip showing effects of...
    Post by: Forestvon, Apr 26, 2018 in forum: Advocacy Projects and Campaigns
  10. Forestvon
    Post

    A song for ME: Blowin' in the wind

    but it didn't stay as a link on here!
    Post by: Forestvon, Apr 24, 2018 in forum: Advocacy Projects and Campaigns
  11. Forestvon
    Post

    A song for ME: Blowin' in the wind

    I managed to find one elsewhere! [MEDIA]
    Post by: Forestvon, Apr 24, 2018 in forum: Advocacy Projects and Campaigns
  12. Forestvon
    Post

    A song for ME: Blowin' in the wind

    There always used to be a link to a youtube song I could copy and include in an email to group that needs plain text but this showed the pic...
    Post by: Forestvon, Apr 24, 2018 in forum: Advocacy Projects and Campaigns
  13. Forestvon
    Post

    A song for ME: Blowin' in the wind

    Wow, it is beautifully done, as well very moving and powerful and will appeal to all generations. What a wonderful achievement!
    Post by: Forestvon, Apr 24, 2018 in forum: Advocacy Projects and Campaigns
  14. Forestvon
    Post

    Donation to Tuller/research as respond to our critics

    Assume you mean that if Justice4ME wins then we can discuss variations of it afterwards. Sorry I hadnt reached the post with the poll when I...
    Post by: Forestvon, Apr 17, 2018 in forum: Advocacy Projects and Campaigns
  15. Forestvon
    Post

    Donation to Tuller/research as respond to our critics

    #Justice4pwME as the tag Justice4ME on its own can look like someone campaigning for themselves. even #Justice 4MEcfs wd be clearer and many pwme...
    Post by: Forestvon, Apr 16, 2018 in forum: Advocacy Projects and Campaigns
  16. Forestvon
    Post

    BBC: Chronic fatigue trial results 'not robust', new study says

    Wonder why comments disabled. I looked for it on their website under health and couldnt find it though older articles were there.
    Post by: Forestvon, Mar 23, 2018 in forum: General ME/CFS news
  17. Forestvon
    Post

    Action for ME has joined S4ME

    not sure if this shd be new thread but Sonia Chaudhury was on radio Bristol with John Darvall at about 11.09 this morning. Sorry can't find a link...
    Post by: Forestvon, Mar 16, 2018 in forum: General ME/CFS news
  18. Forestvon
    Post

    Lancet Infectious Diseases: Editorial, "A proper place for retraction", 2017, mentions PACE in passing

    Better to write as you did well, than let things go unchallenged
    Post by: Forestvon, Mar 16, 2018 in forum: General ME/CFS news
  19. Forestvon
    Post

    Action for ME has joined S4ME

    They can hopefully learn - everyone will notice if they refuse to engage.
    Post by: Forestvon, Mar 15, 2018 in forum: General ME/CFS news
  20. Forestvon
    Post

    Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

    There are a number of petitions (4, I think) re ME going round atm and it is hard to get people to keep signing different ones and confusing too...
    Post by: Forestvon, Mar 10, 2018 in forum: Petitions
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