It's available to watch now. ME/CFS Symposium https://videocast.nih.gov/watch=54675
[ATTACH]
I can copy and paste now. I'm not sure what happened earlier.
[MEDIA] Todd Davenport @sunsopeningband Hey @NatureComms. When will you explain why your editors think it’s acceptable for Dr. Anthony Komaroff...
If that's how he meant it, he should have been calling out the BS at the symposium and his colleague Mady Hornig should have called it out in the...
Lipkin: To the patients, the people with ME/CFS, people with Long COVID, you are heard. We don’t have enough resources to do what we need to do...
I don't know what the accusation is based on. I hope they are reading the threads here too! Even if they aren't, I'm sure members here as well as...
In addition to what others have said, we were told we didn't understand the language of neurology and our picking things apart was bad for their...
I don't understand why the healthy controls were fatigued doing the cognitive testing. Why would healthy people be fatigued doing their simple tests?
I can't believe how they are talking about us already! :banghead:
My concern is that people who would otherwise participate in advocacy and email their Members of Congress may now not do so because of the...
I have no idea what Janet Dafoe is talking about in her tweets to Solve ME/CFS saying that ME/CFS isn't mentioned. ME/CFS is mentioned. It's not...
The Death Threat Myth Exposed Posted on April 6, 2021 by Jennie Spotila https://occupyme.net/2021/04/06/the-death-threat-myth-exposed/
NIH Attitudes Affect Policy: A Story In Two Parts Posted on June 27, 2017 by Jennie Spotila...
Here are two articles in the the Washington Post by Leana Wen about the NIH ME/CFS study. I'm posting them because the first one is about a...
I wonder if there were any violations regarding informed consent. Maybe there is something here that can help us. Informed Consent FAQs...
Here are some Occupy ME blogs by Jennie Spotila. This is what I found on a quick search and wanted to post them here. I tried to copy a section...
How did he go from this [MEDIA] Todd Davenport @sunsopeningband I'll note that not one scientist in any press I've read so far about the Wallit...
NIH, VA Launch Study of Gulf War Illness https://nihrecord.nih.gov/2023/05/12/nih-va-launch-study-gulf-war-illness VA-NIH Project IN-DEPTH...
I'm extremely disappointed to see the Massachusetts ME/CFS & FM Association giving this person a platform. :banghead: Judy Tsafrir, M.D. Holistic...
Separate names with a comma.
