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  1. Laurie P
    Post

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    Evaluating and Supporting Patients with Long COVID in Returning to Work https://emergency.cdc.gov/coca/calls/2023/callinfo_061523.asp Transcript...
    Post by: Laurie P, Jun 17, 2023 in forum: News from organisations
  2. Laurie P
    Post

    ME Awareness Day / Week / Month, May 2023

    Text of Tweets
    Post by: Laurie P, Jun 2, 2023 in forum: Advocacy Projects and Campaigns
  3. Laurie P
    Post

    A catatonic woman awakened after 20 years. Her story may change psychiatry. Washington Post

    They aren't even giving her adequate maintenance care! :mad: :broken_heart:
    Post by: Laurie P, Jun 2, 2023 in forum: Other health news and research
  4. Laurie P
    Post

    Parents want ban on treatment to unlearn 'autistic behaviour' - NOS

    Matthew Israel https://en.wikipedia.org/wiki/Matthew_Israel Judge Rotenberg Educational Center...
    Post by: Laurie P, May 29, 2023 in forum: Other health news and research
  5. Laurie P
    Post

    Long Covid in the media and social media 2023

    Text of Tweets Great audio clip with Rep. Anna Eshoo Typical response from Dr. Koroshetz in the article 'Screaming Into a Void': Long COVID...
    Post by: Laurie P, May 27, 2023 in forum: Long Covid news
  6. Laurie P
    Post

    Long Covid in the media and social media 2023

    Very disappointing quotes from Leonard Jason. A cardiologist wanted to prevent long COVID. He turned to meditation. A recent review of research...
    Post by: Laurie P, May 20, 2023 in forum: Long Covid news
  7. Laurie P
    Post

    ME Awareness Day / Week / Month, May 2023

    Excellent article by Ryan Prior in Psychology Today. COVID Long Haulers Protest in DC: "Pandemics Are Chronic" As the COVID-19 public health...
    Post by: Laurie P, May 18, 2023 in forum: Advocacy Projects and Campaigns
  8. Laurie P
    Post

    ME Awareness Day / Week / Month, May 2023

    Text of Tweet
    Post by: Laurie P, May 16, 2023 in forum: Advocacy Projects and Campaigns
  9. Laurie P
    Post

    ME Awareness Day / Week / Month, May 2023

    Text of Tweets
    Post by: Laurie P, May 16, 2023 in forum: Advocacy Projects and Campaigns
  10. Laurie P
    Post

    ME Awareness Day / Week / Month, May 2023

    Washington, DC pictures with lots of pictures of pillowcases. https://meaction.smugmug.com/MillionsMissing-2023/ I made a pillowcase with the...
    Post by: Laurie P, May 14, 2023 in forum: Advocacy Projects and Campaigns
  11. Laurie P
    Post

    ME Awareness Day / Week / Month, May 2023

    Morgan Stephens @morganstephensa I've been asked to share my Long COVID speech transcript from yesterday. So, voila! Excerpt from speech:
    Post by: Laurie P, May 14, 2023 in forum: Advocacy Projects and Campaigns
  12. Laurie P
    Post

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Recently named cancer institute director may become head of NIH Cancer researcher Monica Bertagnolli would take position vacated in 2021 by...
    Post by: Laurie P, Apr 20, 2023 in forum: News from organisations
  13. Laurie P
    Post

    Exercise Pathophysiology in ME/CFS and Post-Acute Sequelae of SARS-CoV-2: More in Common Than Not? 2023, Joseph, Systrom et al.

    @dave30th, please also look at this thread. Dysautonomia International 10th Annual Conference: 'Collaborating for Cures', July 14-17, 2022...
    Post by: Laurie P, Apr 15, 2023 in forum: Long Covid research
  14. Laurie P
    Post

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    davidtuller @davidtuller1 Why is the NIH counting a $3.6 million award to a project on cancer-related fatigue as part of the $13 million spent on...
    Post by: Laurie P, Apr 14, 2023 in forum: News from organisations
  15. Laurie P
    Post

    Long Covid in the media and social media 2023

    Disability Denied: Unable to Work, COVID Long Haulers Face Barriers to Benefits The long COVID crisis exposes a disability claims system in...
    Post by: Laurie P, Apr 14, 2023 in forum: Long Covid news
  16. Laurie P
    Post

    Functional Neurological Disorder - an article from the NIH

    CFS/ME, chronic fatigue syndrome / M.E. and Chronic Fatigue Syndrome (CFS/ME) are on the fatigue page...
    Post by: Laurie P, Apr 13, 2023 in forum: Other psychosomatic news and research
  17. Laurie P
    Post

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Here are a couple blogs by Jennie Spotila about what the NIH claims to have spent and what they actually spent in previous years. The 2020 NIH...
    Post by: Laurie P, Apr 13, 2023 in forum: News from organisations
  18. Laurie P
    Post

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    M. and S. Shaw @twoShaws People living w/ #MyalgicEncephalomyelitis #LongCOVID #pwME #pwLC, did you see that on...
    Post by: Laurie P, Apr 13, 2023 in forum: News from organisations
  19. Laurie P
    Post

    'Long Covid Research Initiative' and Polybio funded to research viral persistence and antiviral treatments

    Thread of LongCovid Research Consortium (LCRC) projects. [MEDIA]
    Post by: Laurie P, Apr 12, 2023 in forum: Long Covid news
  20. Laurie P
    Post

    Long Covid in the media and social media 2023

    Thank you, @Mfairma. Thread [MEDIA] Text of tweets
    Post by: Laurie P, Apr 10, 2023 in forum: Long Covid news
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