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  1. Laurie P
    Post

    New York Magazine - Intelligencer: Has Long Covid Always Existed, by Jeff Wise, November 2022

    [MEDIA] [MEDIA] [MEDIA]
    Post by: Laurie P, Nov 6, 2022 in forum: Long Covid news
  2. Laurie P
    Post

    New York Magazine - Intelligencer: Has Long Covid Always Existed, by Jeff Wise, November 2022

    [MEDIA]
    Post by: Laurie P, Nov 5, 2022 in forum: Long Covid news
  3. Laurie P
    Post

    New York Magazine - Intelligencer: Has Long Covid Always Existed, by Jeff Wise, November 2022

    As all of the stereotypes are already entrenched, this attitude is profoundly disturbing to me because it forces patients to be the ones who have...
    Post by: Laurie P, Nov 5, 2022 in forum: Long Covid news
  4. Laurie P
    Post

    Long Covid in the media and social media 2022

    https://www.cnn.com/2022/10/17/opinions/long-covid-health-care-smith/index.html [MEDIA]
    Post by: Laurie P, Oct 17, 2022 in forum: Long Covid news
  5. Laurie P
    Post

    Series of Guardian articles on Long Covid, October 2022

    Dr Anthony Fauci: long Covid is an ‘insidious’ public health emergency...
    Post by: Laurie P, Oct 17, 2022 in forum: Long Covid news
  6. Laurie P
    Post

    Risk factors for suicidal ideation in a chronic illness 2022 Elliott and Jason

    I would imagine it's because of things like: Decreased income. Financial insecurity. Enforced poverty. Poor housing and homelessness. Having to...
    Post by: Laurie P, Oct 16, 2022 in forum: ME/CFS research
  7. Laurie P
    Post

    News from the USA, United States of America

    Call it data liberation day: Patients can now access all their health records digitally...
    Post by: Laurie P, Oct 9, 2022 in forum: Regional news
  8. Laurie P
    Thread

    ‘Electrifying’ book about women with disabilities sells for six figures - Frances Ryan book

    A new book billed as a guide to life for disabled women and non-binary people has sold for six figures, which is believed to be one of the biggest...
    Thread by: Laurie P, Oct 7, 2022, 7 replies, in forum: General disability topics and advocacy
  9. Laurie P
    Post

    Long Covid in the media and social media 2022

    CDC: Majority of Adults with Long COVID-19 Report Trouble Performing Daily Activities More than 80% of adults with long COVID say their long-term...
    Post by: Laurie P, Oct 7, 2022 in forum: Long Covid news
  10. Laurie P
    Post

    Is Long Covid a type of ME/CFS? Discussion thread

    How Chronic Fatigue Syndrome is helping doctors understand long COVID...
    Post by: Laurie P, Oct 6, 2022 in forum: Possible causes and predisposing factor discussion
  11. Laurie P
    Post

    USA: The RECOVER Initiative - Long Covid research

    I appreciate the blog but we need action as this is the reality for ME/CFS: [MEDIA]
    Post by: Laurie P, Oct 4, 2022 in forum: Long Covid news
  12. Laurie P
    Post

    USA: News from the Bateman Horne Center

    [MEDIA] Post about the discussion is here: Is Long Covid a type of ME/CFS? Discussion thread
    Post by: Laurie P, Oct 4, 2022 in forum: News from organisations
  13. Laurie P
    Post

    The Atlantic - Long COVID Has Forced a Reckoning for One of Medicine's Most Neglected Diseases - by Ed Yong

    Senator Markey is my senator and while I appreciate this because it’s better than nothing (Stockholm Syndrome), I would have also liked to see...
    Post by: Laurie P, Sep 28, 2022 in forum: General ME/CFS news
  14. Laurie P
    Post

    USA - 2022 Millions Missing protest: Online training session for those taking action from home

    Good find, @ahimsa :thumbup:. What a heartbreaking story. This jumped out at me. I don't think I've come across this information before.
    Post by: Laurie P, Sep 16, 2022 in forum: Advocacy Action Alerts
  15. Laurie P
    Post

    USA - 2022 Millions Missing protest: Online training session for those taking action from home

    Laurie Jones at ME Action sent me an email today saying, "Thanks, Laurie! We love Rebecca Vallas and work with her closely. I will see if she...
    Post by: Laurie P, Sep 15, 2022 in forum: Advocacy Action Alerts
  16. Laurie P
    Post

    USA - 2022 Millions Missing protest: Online training session for those taking action from home

    I sent one more letter to ME Action: Dear Laurie Jones, Please send this to your press team too so they can have these talking points along with...
    Post by: Laurie P, Sep 15, 2022 in forum: Advocacy Action Alerts
  17. Laurie P
    Post

    USA - 2022 Millions Missing protest: Online training session for those taking action from home

    I received this email tonight regarding the information I sent to ME Action that is in post #9 above. It would have been nice if she told me what...
    Post by: Laurie P, Sep 15, 2022 in forum: Advocacy Action Alerts
  18. Laurie P
    Post

    USA - 2022 Millions Missing protest: Online training session for those taking action from home

    This is the email I got from ME Action today. I sent them the 2 things I posted above in posts #8 and #9. I’ve been sick since 1983 and I’m...
    Post by: Laurie P, Sep 15, 2022 in forum: Advocacy Action Alerts
  19. Laurie P
    Post

    USA - 2022 Millions Missing protest: Online training session for those taking action from home

    Biden needs to be held to his promise to expand SSI benefits! Democrats Want to Reform This Program That Helps Poor Elderly and Disabled...
    Post by: Laurie P, Sep 14, 2022 in forum: Advocacy Action Alerts
  20. Laurie P
    Post

    USA - 2022 Millions Missing protest: Online training session for those taking action from home

    [MEDIA] Direct link to #MillionsMissing 2022 Activism From Home Toolkit...
    Post by: Laurie P, Sep 13, 2022 in forum: Advocacy Action Alerts
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