Thanks. She has met Sonya and asked to join, but I’m not sure if she is officially a member yet.
I wondered that. Its webpage on funding seems to be out of date: https://www.cochrane.org/about-us/our-funders-and-partners But if Cochrane...
To date we have only discussed submitting oral and written parliamentary questions but I think she would be amenable to asking questions of other...
My MP has indicated a willingness and enthusiasm to submit questions about ME/CFS on my behalf. Any suggestions for anything she could usefully...
Thanks to @Sasha for highlighting my fundraising. Sorry, I’ve not had the capacity to join the discussion until now. I haven’t managed to read...
I wonder if SW and Dame Clare are libertarians. As far as I’m aware they are friends with Fiona and Claire Fox, and I seem to remember CG was...
Bayes’ Theorem is the more conventional form but I always add the extra s to the possessive form of singular nouns which end with an s. To me, it...
This is one of the examples I was thinking of: From X: “Simon Wessely co-authored article criticising NICE decision to prioritise long term...
Yes. I don’t think this argument is as well known or used as it should be: if one accepts that the therapies don’t work, the psychological harm is...
I can think of one rule that would make a big difference: Apply the same standards to research of therapist delivered interventions (particularly...
It’s a shame S4ME isn’t on the list, although I am assume there will be quite a few active members of the forum who are involved as members of...
Yes, but important to remember that the Oxford criteria does not preclude severe patients. The FINE trial used Oxford and included severe patients...
Susie Dent on Bluesky (https://bsky.app/profile/susiedent.com/post/3l364skjisk24): “Word of the day is ‘catchfart’, from the 17th century, used...
I think that is unlikely as he was given IV antibiotics on multiple occasions over the course of 18 months. The improvement followed the 10 day...
These are the links that Graham sent me of studies which report finding infections masked by fungal infections in people with chronic sinus...
Excerpts from conversations with Graham: Me: “Graham, Out of interest, do you think the IV anti-fungals they gave you in hospital might have...
Anecdotal evidence of improvement following anti-fungal treatment As some of your may recall, when Graham McPhee was in hospital with recurrent...
Further to my post above: I've no idea if the movements I get are the same or similar to other people with severe ME/CFS but I would put mine in...
FWIW I have had severe ME/CFS for 32 years and I get abnormal involuntary movements, which at times can be quite violent. They were observed...
Thanks @ME/CFS Skeptic I find it hard to keep up with the research and your balanced summaries are an excellent resource. Although it hasn’t...
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