If there is to be consistency in case definitions, that needs to include nomenclature. I noticed that the google doc page where you can add your...
I wish we could get a consensus on calling it ME/CFS, at least until we know enough about the aetiology to call it something else. There seems to...
@Jonathan Edwards In one of your responses your refer to DecodeME and some of the proteomics studies that are under way. I’m not able to keep up...
My comment wasn’t a criticism of scientists doing ME/CFS research. I’m hugely grateful to them [edit: the good ones], and we need many more of...
BPS advocates would argue that the nature of ME/CFS (ie that it is “perpetuated by unhelpful beliefs”) causes patients to have a bias for...
Do we need another forum? Doesn’t feel like the best use of resources to me.
@ME/CFS Skeptic I see you’ve signed the statement. What are your thoughts on the discussion above?
Jonathan has now responded to each of the reviews that have been left under his Qeios article. If you click on “comments” under each review you...
On reflection, I think @Nightsong and @Jonathan Edwards may be right. It’s tricky as there have been many studies that would have been improved...
Thinking about this again after reading @ME/CFS Skeptic’s blog it occurs to me that what has happened is even more absurd. First, two badly...
My reading of the document is that you would have fitted the definition based on the fact that you had cognitive impairment when you were in PEM....
I’m impressed that the campaign has got Rory involved, and I hope that is something that can be built on, but to me his message reads like the...
Archived copy of the article:...
I wouldn’t be at all surprised to see a letter from them protesting that psychological illnesses like LC and ME/CFS are real. PR manipulation at...
For those not familiar with Young, he has quite a high media profile in the UK but he is not someone whose views are taken seriously by those who...
I gather this paper was being discussed on the BBC Today programme this morning but I’ve not listened yet.
I hope some people will. I’m afraid I’m not up to it at the moment.
I’d be very happy to help. It is an unequivocal fact that ME/CFS is classified as neurological. My point is that we don’t know enough about the...
Thanks for doing this, Adam. There is some excellent content and you’ve done a great job of condensing it down into one digestible video. Some...
Does anyone know if Charles Shepherd has commented on the article by Neil Riley on Facebook or elsewhere? Reading Riley’s article makes his...
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