I think I’ve said this before but maybe worth repeating. What I consider to be me ME/CFS symptoms started suddenly when I had an accurate...
I agree that the doctors knew how to keep Maeve alive. What I don’t know is whether all the ME/CFS deaths have been preventable or not. Emily...
No, that was a faux pas. Quite different.
Latest update from the campaign: https://www.thereforme.uk/p/campaign-update-8-the-media-is-asking
I’m confused. The Times report says: “However, the coroner’s recommendations are not legally enforceable and at a hearing last month Archer said...
I can’t remember what has been discussed on this thread already so I apologise if this is a repeat but a thought occurs to me: Samples were taken...
I’m remembering the “There is a way” text to Gillian Leng, suggesting she kept the new NICE gl recommendations but tampered with the evidence...
Letter in yesterday’s Times from Ilora Finlay & Peter Barry:...
I asked my (helpful) GP to change my notes to say that I have ME/CFS instead of CFS. She said the only options on her system were CFS or ME, so...
Long Thread by Binita Kane on Xitter: Full transcript of BK’s thread: For anyone interested in the pathophysiology of MECFS there’s a nice...
Binita has posted a long thread on X/Twitter: I’ve posted the full Xitter thread on the S4ME thread about the 2021 paper she references:...
Cont… Edit: full transcript of BK’s thread: For anyone interested in the pathophysiology of MECFS there’s a nice infographic here from this...
Binita Kane has posted a thread on this 2021 paper on X/Twitter. cont…
X/Twitter exchange between Dom Salisbury, Todd Davenport, Binita Kane and Sarah Boothby: DS: I don't think we know enough about ME to say with...
And the first thing he will probably do is point out all the inaccuracies and/or lack of evidence supporting claims made by anti-BPS doctors at...
Binita Kane, who is now an ambassador for #ThereForME, was interviewed on BBC Breakfast this morning following part 2 of Maeve’s inquest....
Just to spell it out for anyone reading this who isn’t aware, promoting biomedical theories and treatments which are not supported by evidence is...
X/Tweets from Sean O’Neill: “Maeve died from Severe ME three years ago next week (3 Oct 2021). The inquest into her death finally closed today....
Thank you @Karen Hargrave for joining the forum. I appreciate the difficulties of trying to juggle your work, your health and caring for husband...
Don’t we need physician-led clinics with specialist nurses, integrated with collaborative research centres, which have inpatient, outpatient...
Separate names with a comma.
